Glaucoma Disease » Glaucoma Symptoms » What ever happened to Dez?

What ever happened to Dez?

Question:

Never ending tons of fun, eh Lana?  I have actually seen a total of three specialists at the eye clinic.  I kept getting kicked up stairs. Funny, the first one (drop dead gorgeous) in her late twenties, referred me to to one in her late thirties who had had experience with HCV patients.  She kicked me up to a doc in his fifties.  They tested and photographed me with an array of different machines. About a month after tx they had a opthamologist (sp) give me and eye exam and write a new script.  She spent more time testing me than I have ever been tested before on an eye exam. She commented on the weakness of my right eye where the blood vessel had ruptured.  The VA provided me with a new set of Chinese (yeah that’s right) glasses that made me look hilarious; but I could see clear as a ding dong again! Funny, before the Chinese glasses arrived I took my VA script to my optometrist to replace the lens in my existing frames with the new script.  It was so far off from my previous one that he refused to fill it.  I told him I’d wait for the Chinese glasses to arrive and see how they worked.  Of course they worked fine so he filled my script. Yip iddy yee ha!~ – Hide quoted text — Show quoted text -szozu wrote: > Be careful with that "ocular migraine" stuff. An ophthalmologist tried to > tell me that’s what I had when I lived in Spain, though he finally said, > "…though you may want to visit a neurologist, just to be on the safe > side." > So off I went to the neurologist and after  evoked potentials and some other > tests, it was discovered that I had an inflammation of both optic nerves. I > had a series of injections of corticosteroids and B vitamins and the > symptoms, similar to what you describe, disappeared, however, over a year > later when tested for the third time, I still had some inflammation. My > colour vision and vision in general has never been the same. > While on IFN, I noticed that there was a marked deterioration of brightness > in my right eye. After stopping tx and being diagnosed with sarcoidosis by > the dermatologist, he asked me if I was having any vision problems. When I > answered "yes" he sent me to the best ophthalmologist in town, who was also > the only specialist in sarcoidosis. She found some atrophy of the optic > nerve and after testing, they confirmed that my colour vision was a bit off > in the red and green spectrum. I’m still waiting for the results of the > other tests and to have an angiogram so that they can view the blood vessels > better. > All this ties in (at least in my mind) with the neuropathy I suffered while > on IFN. It’s obvious that I have a tendency towards demyelination. People > who have optic neuritis often end up with MS, which is a demyelination > disease. When the nerves lose the protective myelin sheath, the electrical > signals from the brain are interrupted. > Conclusion: I hope that your drop-dead gorgeous specialist tested your > evoked potentials, because what you describe sounds very much like what I > had experienced, including the part about each episode lasting about 20 > minutes. > Lana > "Geb Bixer" <gbi…@yahoo.com> wrote in message > news:vpvmhsn6pr9ued@corp.supernews.com… >>I had a blood vessel rupture in or behind my retina caused by the >>interferon during my tx.  I had the cotton spots, little diamond like >>bursts, squiggly lines not unlike lightning bolts and a partial loss of >>vision.  It has mostly cleared up.  Occasionally, for about 20 minutes >>at a pop, some of the symptoms will reappear.  The retina specialist at >>the Eye Clinic says although it looks like things have stabilized and >>there is no further damage, what I am experiencing now is ocular >>migraine.  The specialist (stone cold beautiful drop dead knockout) says >>I’m lucky because with some patients it is the onset of a full blown >>migraine headache.

Response:

Here’s my 2 cents worth. I have diabetes, but not glaucoma.  After I started tx I noticed muscular pain moving my eyes and intermittent blurriness, along with what seemed to be cotton spots. I naturally went to the optho right away. The muscular pain turned out to be "one of those oddball sides" that keeps tx interesting. It was gone within 2 weeks, although it popped back up for a week not too long ago. I feel my optho mis-diagnosed me with blepharemia, but the main thing is that tx DOES cause changes in intraocular pressure.  Infrequent blurred vision is to be expected. In my case, it simply means wait a year (for the eyeballs to stabilize) before getting a new prescription. In your case, with glaucoma, it may be more serious. My suggestion is to see and talk with your optho before, and during treatment. But, don’t panic if you get blurred vision.  Call the Doc. Steve "Keith" <rea…@mostly.com> wrote in message

news:ljcupvc1m21c8ivit5ea7dnoqo95jdeira@4ax.com… – Hide quoted text — Show quoted text -> Shawn, > I can’t believe you said that. I have glaucoma and got worried when I > read interferon can increase intraocular pressure. Just before getting > told I have hep-c, my eye doctor told me my glaucoma’s getting worse > because of increasing pressure. It had been stable since eye > operations 10 or 12 years ago. I don’t need more pressure. There’s > already been major damage in my eyes. > You’re talking about vision changed every day? Did a doctor say it was > because of changes in pressure? When I told my eye doctor I would have > to go on interferon but was worried about a rise in pressure, he said, > "Well, I’ll monitor it and if it rises too much you can switch to > another medication." Right. There’s a slew of effective drugs out > there for hep-c. > I’m worried that it will come down to a choice of living longer, or > seeing. Life is weird. > Keith > On Wed, 29 Oct 2003 00:30:48 GMT, "Shawn" <sh…@nospam.net> wrote: > >Keith, thanks for the info on "The Elegant Universe". I > >wanted to read the book but with all the meds I’m on my > >ocular pressure changes almost daily. So, I don’t get to > >read much anymore. My wife sometimes even has to read the > >paper for me. Keep posting there is a wealth of knowledge > >here and some damn nice folks (aside from the trolls!!!)

Response:

Steve That sounds so weird. Cotton wool spots on your eyes. Lord. I’m really wary about these vision sides. My eyes are going down the tubes without Interferon’s help. I’m going to see my eye doctor every month while on Interferon so he can monitor these things. I’m "lucky" enough to already be on anti-depressants. I take Effexor. Hopefully it will help me through tx. I also take trazodone at bedtime, so maybe that will help with the sleeplessness others mention. Mental fog sounds like lots of fun too. I’m already mindless. I’m supposed to do a colonoscopy tomorrow and only just read the doctor’s directions and found I shouldn’t have been taking aspirin for the past four days. I’ve been taking 2 aspirin every four hours for about thirty years, so I imagine they’ll need to reschedule. Waiting for a call back now. I’m glad your eyes got better on their own, Steve. Thanks for the advice. Keith – Hide quoted text — Show quoted text -On Thu, 30 Oct 2003 02:58:01 GMT, "SteveS" <m…@privacy.net> wrote: >Right, Keith… "cotton wool spots". >They are exactly as they sound, are detectable by your eye Doc, and you’ll >know if you get them. >They are a symptom to watch for.  They could point to retinal problems or >they could go away, as they did for me. >As you prepare for treatment, you may want to get your head examined as >well.  Hehehe.  Some here believe you should get started on anti-D’s before >you start tx.  I personally can’t handle them, but others swear by them. >These are all good questions for your Docs.  If you don’t like the answers >you get, post em here.  You’ll get more answers. >Seriously, tx is most difficult at the start, but you can get through it. >Good luck, >Steve

Response:

that’s a pretty good description Elmo. A "slow rolling train", hahaha… Well the train, he be going a bit faster for me right now and I’m having a hard time staying ahead!!!! hahahaha…. — Russ Tanner Palmer, Alaska email: russattannersacredotcom http://www.tannersacre.com <elmoemer…@webtv.net> wrote in message

news:3559-3F9F13D0-69@storefull-2316.public.lawson.webtv.net… – Hide quoted text — Show quoted text -> I heard from him a week or so ago and he hasn’t been using his computer > at all for the past few weeks.  He’s still having  a hard time with the > meds, has less than either 18 or 13 weeks left of tx, I forget which. > He wasn’t taken off tx for his other condition.  Said he was thinking he > may come back on-line soon, maybe not. > I was the same way you are, Keith, wanting to get started right away > once I made the decison.  You’ve heard the expression "Be careful what > you ask for!" > ahahahahahaha  Don’t worry, a speedy freight train isn’t going to come > rolling thru your living room once you do the first shot.  It’s more > like one of those slow rollers they pave streets with hits you.  On > second thought, a lightening bolt may hit you shortly after the > injection.  LOL.  Seriously, the first one is usually toughest. > You’ll make it ok.  I’d be trying to get all the things that are a pain > in the ass to do, yet necessary, out of the way before your first shot. > I have a hard time getting to anything I don’t enjoy anymore. > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Just some of the fun sides of post transplant meds!! The says he’ll keep an "eye" on it!!! (pun intended). — Regards,        Shawn . "Keith" <rea…@mostly.com> wrote in message

news:ljcupvc1m21c8ivit5ea7dnoqo95jdeira@4ax.com… – Hide quoted text — Show quoted text -> Shawn, > I can’t believe you said that. I have glaucoma and got worried when I > read interferon can increase intraocular pressure. Just before getting > told I have hep-c, my eye doctor told me my glaucoma’s getting worse > because of increasing pressure. It had been stable since eye > operations 10 or 12 years ago. I don’t need more pressure. There’s > already been major damage in my eyes. > You’re talking about vision changed every day? Did a doctor say it was > because of changes in pressure? When I told my eye doctor I would have > to go on interferon but was worried about a rise in pressure, he said, > "Well, I’ll monitor it and if it rises too much you can switch to > another medication." Right. There’s a slew of effective drugs out > there for hep-c. > I’m worried that it will come down to a choice of living longer, or > seeing. Life is weird. > Keith > On Wed, 29 Oct 2003 00:30:48 GMT, "Shawn" <sh…@nospam.net> wrote: > >Keith, thanks for the info on "The Elegant Universe". I > >wanted to read the book but with all the meds I’m on my > >ocular pressure changes almost daily. So, I don’t get to > >read much anymore. My wife sometimes even has to read the > >paper for me. Keep posting there is a wealth of knowledge > >here and some damn nice folks (aside from the trolls!!!)

Response:

Right, Keith… "cotton wool spots". They are exactly as they sound, are detectable by your eye Doc, and you’ll know if you get them. They are a symptom to watch for.  They could point to retinal problems or they could go away, as they did for me. As you prepare for treatment, you may want to get your head examined as well.  Hehehe.  Some here believe you should get started on anti-D’s before you start tx.  I personally can’t handle them, but others swear by them. These are all good questions for your Docs.  If you don’t like the answers you get, post em here.  You’ll get more answers. Seriously, tx is most difficult at the start, but you can get through it. Good luck, Steve "Keith" <rea…@mostly.com> wrote in message

news:k1jvpv82mnpeo8sl69qkd0an9bbqiu495h@4ax.com… – Hide quoted text — Show quoted text -> Steve, thanks. I’ll take your advice. > You mentioned "cotton spots". I did come across a mention of something > like that. It refers to visual side effects from interferon, and says > "examination revealed cotton wool spots in one other." Here’s the > link: > http://www.hepatitis-central.com/hcv/ifn/neuro/impair.html > I wonder how much the pressure increases with interferon. That’s one > figure I haven’t encountered in my research. > Keith > On Wed, 29 Oct 2003 04:17:12 GMT, "SteveS" <m…@privacy.net> wrote: > >Here’s my 2 cents worth. > >I have diabetes, but not glaucoma.  After I started tx I noticed muscular > >pain moving my eyes and intermittent blurriness, along with what seemed to > >be cotton spots. > >I naturally went to the optho right away. > >The muscular pain turned out to be "one of those oddball sides" that keeps > >tx interesting. > >It was gone within 2 weeks, although it popped back up for a week not too > >long ago. > >I feel my optho mis-diagnosed me with blepharemia, but the main thing is > >that tx DOES cause changes in intraocular pressure.  Infrequent blurred > >vision is to be expected. > >In my case, it simply means wait a year (for the eyeballs to stabilize) > >before getting a new prescription. > >In your case, with glaucoma, it may be more serious. > >My suggestion is to see and talk with your optho before, and during > >treatment. > >But, don’t panic if you get blurred vision.  Call the Doc. > >Steve

Response:

- Hide quoted text — Show quoted text -Keith wrote: > Russ, > I’ve got the same image on my desktop. I was shocked to look up at > Mars when everyone was so excited about its closeness recently. I > mean, it was RED. I’ve never seen anything like that. After living all > my life in bright NYC, I now find myself in a rural area upstate. I > look up and I’m amazed. I had no idea all that was up there. Maybe > I’ll get a telescope to celebrate the end of treatment. > As for not understanding it, that’s why this Brian Greene guy is so > amazing. He’s so clear that you actually understand all the > complicated stuff he’s talking about. I’m psyched for the show. 8 PM > PBS tonight the 28th. > I read your posts (not just yours, but everyone who posts about sides, > and my heart goes out to you. I lived with a guy who had AIDS and > hep-C. When he did Interferon, he freaked. He was so sick. It seemed > his nights were the worst. He talked a lot about his nightmares. > Anyway, I’ll join you and Shawn and everyone else soon enough. More > power to you. > Lu Tse: I don’t quite get it but it was positive. Thanks. I’m not > really sure of everyone’s stories yet, but I did note from earlier > posts how to pronounce your name, so I’ve got that down. > Chop, thanks for the Dez information. He seemed to really go out of > his way to write — pretty eloquently — to people who posted and were > in need. So many of you have. As for flamers, I’ve never responded and > am always shocked that anyone does. There’s zip percentage in that. > Later, Keith > On Tue, 28 Oct 2003 10:15:03 -0900, "Russ Tanner" <sourdo55 at > yahoo.com> wrote: >>Well good luck on your start date Keith. I’m eagerly awaiting the 12-18 hour >>after Monday night post shot side affects to start raising hell. Grit your >>teeth man, dig in and hang on. I’m not going to bullshit anyone, somedays >>this combo/mombo sides can be some tough stuff. >>Space Time, the universe, all interesting concepts, most way over my head. >>But I like math and problems and solving them. It amazes me to the new ideas >>that pop up about the universe. Oh, BTW, I have a very nice Hubble Telescope >>shot of Mars at it’s closest to Earth on my desk top. Way cool pic…. >>http://www.mtaonline.net/~rtanner/marsHubble.jpg >>It really helps me to know I’m not the only miserable person on treatment. >>I’m extra lucky to have a very close friend who also is doing the treatment. >>Lately we really have been leaning on each other. Kiak really has become my >>best friend, besides all of you too.. here is a pic of her and I >>http://www.mtaonline.net/~rtanner/russ&karen.jpg >>I miss seeing Dez myself, I hope he is ok.

http://trfn.clpgh.org/aaap/pzapadka/whois.html   The chap was an astronomer/phycisist. — "Whale Oil Beef Hooked." "Lu Tze."

Response:

Be careful with that "ocular migraine" stuff. An ophthalmologist tried to tell me that’s what I had when I lived in Spain, though he finally said, "…though you may want to visit a neurologist, just to be on the safe side." So off I went to the neurologist and after  evoked potentials and some other tests, it was discovered that I had an inflammation of both optic nerves. I had a series of injections of corticosteroids and B vitamins and the symptoms, similar to what you describe, disappeared, however, over a year later when tested for the third time, I still had some inflammation. My colour vision and vision in general has never been the same. While on IFN, I noticed that there was a marked deterioration of brightness in my right eye. After stopping tx and being diagnosed with sarcoidosis by the dermatologist, he asked me if I was having any vision problems. When I answered "yes" he sent me to the best ophthalmologist in town, who was also the only specialist in sarcoidosis. She found some atrophy of the optic nerve and after testing, they confirmed that my colour vision was a bit off in the red and green spectrum. I’m still waiting for the results of the other tests and to have an angiogram so that they can view the blood vessels better. All this ties in (at least in my mind) with the neuropathy I suffered while on IFN. It’s obvious that I have a tendency towards demyelination. People who have optic neuritis often end up with MS, which is a demyelination disease. When the nerves lose the protective myelin sheath, the electrical signals from the brain are interrupted. Conclusion: I hope that your drop-dead gorgeous specialist tested your evoked potentials, because what you describe sounds very much like what I had experienced, including the part about each episode lasting about 20 minutes. Lana "Geb Bixer" <gbi…@yahoo.com> wrote in message

news:vpvmhsn6pr9ued@corp.supernews.com… – Hide quoted text — Show quoted text -> I had a blood vessel rupture in or behind my retina caused by the > interferon during my tx.  I had the cotton spots, little diamond like > bursts, squiggly lines not unlike lightning bolts and a partial loss of > vision.  It has mostly cleared up.  Occasionally, for about 20 minutes > at a pop, some of the symptoms will reappear.  The retina specialist at > the Eye Clinic says although it looks like things have stabilized and > there is no further damage, what I am experiencing now is ocular > migraine.  The specialist (stone cold beautiful drop dead knockout) says > I’m lucky because with some patients it is the onset of a full blown > migraine headache.

Response:

I had a blood vessel rupture in or behind my retina caused by the interferon during my tx.  I had the cotton spots, little diamond like bursts, squiggly lines not unlike lightning bolts and a partial loss of vision.  It has mostly cleared up.  Occasionally, for about 20 minutes at a pop, some of the symptoms will reappear.  The retina specialist at the Eye Clinic says although it looks like things have stabilized and there is no further damage, what I am experiencing now is ocular migraine.  The specialist (stone cold beautiful drop dead knockout) says I’m lucky because with some patients it is the onset of a full blown migraine headache. – Hide quoted text — Show quoted text -Keith wrote: > Steve, thanks. I’ll take your advice. > You mentioned "cotton spots". I did come across a mention of something > like that. It refers to visual side effects from interferon, and says > "examination revealed cotton wool spots in one other." Here’s the > link: > http://www.hepatitis-central.com/hcv/ifn/neuro/impair.html > I wonder how much the pressure increases with interferon. That’s one > figure I haven’t encountered in my research. > Keith > On Wed, 29 Oct 2003 04:17:12 GMT, "SteveS" <m…@privacy.net> wrote: >>Here’s my 2 cents worth. >>I have diabetes, but not glaucoma.  After I started tx I noticed muscular >>pain moving my eyes and intermittent blurriness, along with what seemed to >>be cotton spots. >>I naturally went to the optho right away. >>The muscular pain turned out to be "one of those oddball sides" that keeps >>tx interesting. >>It was gone within 2 weeks, although it popped back up for a week not too >>long ago. >>I feel my optho mis-diagnosed me with blepharemia, but the main thing is >>that tx DOES cause changes in intraocular pressure.  Infrequent blurred >>vision is to be expected. >>In my case, it simply means wait a year (for the eyeballs to stabilize) >>before getting a new prescription. >>In your case, with glaucoma, it may be more serious. >>My suggestion is to see and talk with your optho before, and during >>treatment. >>But, don’t panic if you get blurred vision.  Call the Doc. >>Steve

Response:

Steve, thanks. I’ll take your advice. You mentioned "cotton spots". I did come across a mention of something like that. It refers to visual side effects from interferon, and says "examination revealed cotton wool spots in one other." Here’s the link: http://www.hepatitis-central.com/hcv/ifn/neuro/impair.html I wonder how much the pressure increases with interferon. That’s one figure I haven’t encountered in my research. Keith – Hide quoted text — Show quoted text -On Wed, 29 Oct 2003 04:17:12 GMT, "SteveS" <m…@privacy.net> wrote: >Here’s my 2 cents worth. >I have diabetes, but not glaucoma.  After I started tx I noticed muscular >pain moving my eyes and intermittent blurriness, along with what seemed to >be cotton spots. >I naturally went to the optho right away. >The muscular pain turned out to be "one of those oddball sides" that keeps >tx interesting. >It was gone within 2 weeks, although it popped back up for a week not too >long ago. >I feel my optho mis-diagnosed me with blepharemia, but the main thing is >that tx DOES cause changes in intraocular pressure.  Infrequent blurred >vision is to be expected. >In my case, it simply means wait a year (for the eyeballs to stabilize) >before getting a new prescription. >In your case, with glaucoma, it may be more serious. >My suggestion is to see and talk with your optho before, and during >treatment. >But, don’t panic if you get blurred vision.  Call the Doc. >Steve

Response:

Shawn, I can’t believe you said that. I have glaucoma and got worried when I read interferon can increase intraocular pressure. Just before getting told I have hep-c, my eye doctor told me my glaucoma’s getting worse because of increasing pressure. It had been stable since eye operations 10 or 12 years ago. I don’t need more pressure. There’s already been major damage in my eyes. You’re talking about vision changed every day? Did a doctor say it was because of changes in pressure? When I told my eye doctor I would have to go on interferon but was worried about a rise in pressure, he said, "Well, I’ll monitor it and if it rises too much you can switch to another medication." Right. There’s a slew of effective drugs out there for hep-c. I’m worried that it will come down to a choice of living longer, or seeing. Life is weird. Keith – Hide quoted text — Show quoted text -On Wed, 29 Oct 2003 00:30:48 GMT, "Shawn" <sh…@nospam.net> wrote: >Keith, thanks for the info on "The Elegant Universe". I >wanted to read the book but with all the meds I’m on my >ocular pressure changes almost daily. So, I don’t get to >read much anymore. My wife sometimes even has to read the >paper for me. Keep posting there is a wealth of knowledge >here and some damn nice folks (aside from the trolls!!!)

Response:

I have a feeling that whoever comes back is going to be subjected to some rude comments, just the same as several of us are now.   The way I see it, it’s kind of like learning to live in a cobra den. There’s plenty of snakes that enjoy inflicting their venom.  You have to have your armor on.   Elmo Re: What ever happened to Dez?   Group: alt.support.hepatitis-c Date: Tue, Oct 28, 2003, 9:08pm (EST+5) From: m…@privacy.net (SteveS) Welcome Keith, and good luck on your adventure. Dez, along with many others, are on semi permanent hiatus, waiting for a few trolls to lose interest and stop posting negative and negative engendering material. This is a good group for information and support, so keep posting and just block the trolls, as most of us have, as they continue to change their nicknames. Please don’t ever respond to trolls in any way. Just ignore them and block their address’s. Again, best of luck. Let us know how it goes. Steve "Keith" <rea…@mostly.com> wrote in message

news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… Although a new contributor to this newsgroup, I feel I got to know some of you through reading the zillions of posts I first downloaded from the group. Which makes me say, "Whatever happened to Dez?" I don’t see any recent posts and can’t find an "I’m well now and moving on to different newsgroups" message from him. Also, he and others talked about physics now and then. I’m a total physics freak. Just want to tell anyone who might be interested that Nova on PBS is doing a two-hour show on "The Elegant Universe", the wonderful book by string theorist Brian Greene tonight. It puts the book on screen and, if it’s anything like the book, viewers will understand how reality is put together. It’s a trip. Great way to take your mind off treatment for a while. Got all my drugs preapproved today. I wish they’d start me on the damn interferon so I can see how bad it will be. This week or next week, I guess. Later, Keith http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Great picture Russ.  Glad you have a friend to go through this with and to check up on you during your time off.  Get some rest this winter and focus on the dragon. Dwight – Hide quoted text — Show quoted text -Russ Tanner wrote: > Well good luck on your start date Keith. I’m eagerly awaiting the 12-18 hour > after Monday night post shot side affects to start raising hell. Grit your > teeth man, dig in and hang on. I’m not going to bullshit anyone, somedays > this combo/mombo sides can be some tough stuff. > Space Time, the universe, all interesting concepts, most way over my head. > But I like math and problems and solving them. It amazes me to the new ideas > that pop up about the universe. Oh, BTW, I have a very nice Hubble Telescope > shot of Mars at it’s closest to Earth on my desk top. Way cool pic…. > http://www.mtaonline.net/~rtanner/marsHubble.jpg > It really helps me to know I’m not the only miserable person on treatment. > I’m extra lucky to have a very close friend who also is doing the treatment. > Lately we really have been leaning on each other. Kiak really has become my > best friend, besides all of you too.. here is a pic of her and I > http://www.mtaonline.net/~rtanner/russ&karen.jpg > I miss seeing Dez myself, I hope he is ok.

Response:

Nice pic of you and Kiak, Russ.  Glad you have a good friend in her that you can share your misery with.  Take good care of each other! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

I miss Dez too. Good luck on your new adventure Keith! hc Keith <rea…@mostly.com> wrote in message

news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… – Hide quoted text — Show quoted text -> Although a new contributor to this newsgroup, I feel I got to > know some of you through reading the zillions of posts I first > downloaded from the group. Which makes me say, "Whatever happened to > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > moving on to different newsgroups" message from him. > Also, he and others talked about physics now and then. I’m a total > physics freak. Just want to tell anyone who might be interested that > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > wonderful book by string theorist Brian Greene tonight. It puts the > book on screen and, if it’s anything like the book, viewers will > understand how reality is put together. It’s a trip. Great way to take > your mind off treatment for a while. > Got all my drugs preapproved today. I wish they’d start me on the damn > interferon so I can see how bad it will be. This week or next week, I > guess. > Later, > Keith

Response:

Keith, thanks for the info on "The Elegant Universe". I wanted to read the book but with all the meds I’m on my ocular pressure changes almost daily. So, I don’t get to read much anymore. My wife sometimes even has to read the paper for me. Keep posting there is a wealth of knowledge here and some damn nice folks (aside from the trolls!!!) — Regards,        Shawn . "Keith" <rea…@mostly.com> wrote in message

news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… – Hide quoted text — Show quoted text -> Although a new contributor to this newsgroup, I feel I got to > know some of you through reading the zillions of posts I first > downloaded from the group. Which makes me say, "Whatever happened to > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > moving on to different newsgroups" message from him. > Also, he and others talked about physics now and then. I’m a total > physics freak. Just want to tell anyone who might be interested that > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > wonderful book by string theorist Brian Greene tonight. It puts the > book on screen and, if it’s anything like the book, viewers will > understand how reality is put together. It’s a trip. Great way to take > your mind off treatment for a while. > Got all my drugs preapproved today. I wish they’d start me on the damn > interferon so I can see how bad it will be. This week or next week, I > guess. > Later, > Keith

Response:

I heard from him a week or so ago and he hasn’t been using his computer at all for the past few weeks.  He’s still having  a hard time with the meds, has less than either 18 or 13 weeks left of tx, I forget which. He wasn’t taken off tx for his other condition.  Said he was thinking he may come back on-line soon, maybe not. I was the same way you are, Keith, wanting to get started right away once I made the decison.  You’ve heard the expression "Be careful what you ask for!" ahahahahahaha  Don’t worry, a speedy freight train isn’t going to come rolling thru your living room once you do the first shot.  It’s more like one of those slow rollers they pave streets with hits you.  On second thought, a lightening bolt may hit you shortly after the injection.  LOL.  Seriously, the first one is usually toughest. You’ll make it ok.  I’d be trying to get all the things that are a pain in the ass to do, yet necessary, out of the way before your first shot. I have a hard time getting to anything I don’t enjoy anymore.   Elmo   http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

thanks, she is a great friend, the best…. — Russ Tanner Palmer, Alaska email: russattannersacredotcom http://www.tannersacre.com "Shawn" <sh…@nospam.net> wrote in message

news:hVDnb.1296$Q9.1016@nwrddc02.gnilink.net… – Hide quoted text — Show quoted text -> Nice pic Russ! (I meant of you and Kiak!!!) I loved the Mars > pic too!!! > — > Regards, >        Shawn > . > "Russ Tanner" <sourdo55 at yahoo.com> wrote in message > news:vptg1qinooa12e@corp.supernews.com… > > Well good luck on your start date Keith. I’m eagerly > awaiting the 12-18 hour > > after Monday night post shot side affects to start raising > hell. Grit your > > teeth man, dig in and hang on. I’m not going to bullshit > anyone, somedays > > this combo/mombo sides can be some tough stuff. > > Space Time, the universe, all interesting concepts, most > way over my head. > > But I like math and problems and solving them. It amazes > me to the new ideas > > that pop up about the universe. Oh, BTW, I have a very > nice Hubble Telescope > > shot of Mars at it’s closest to Earth on my desk top. Way > cool pic…. > > http://www.mtaonline.net/~rtanner/marsHubble.jpg > > It really helps me to know I’m not the only miserable > person on treatment. > > I’m extra lucky to have a very close friend who also is > doing the treatment. > > Lately we really have been leaning on each other. Kiak > really has become my > > best friend, besides all of you too.. here is a pic of her > and I > > http://www.mtaonline.net/~rtanner/russ&karen.jpg > > I miss seeing Dez myself, I hope he is ok. > > — > > Russ Tanner > > Palmer, Alaska > > email: russ at tannersacre.com > > http://www.tannersacre.com > > "Keith" <rea…@mostly.com> wrote in message > > news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… > > > Although a new contributor to this newsgroup, I feel I > got to > > > know some of you through reading the zillions of posts I > first > > > downloaded from the group. Which makes me say, "Whatever > happened to > > > Dez?" I don’t see any recent posts and can’t find an > "I’m well now and > > > moving on to different newsgroups" message from him. > > > Also, he and others talked about physics now and then. > I’m a total > > > physics freak. Just want to tell anyone who might be > interested that > > > Nova on PBS is doing a two-hour show on "The Elegant > Universe", the > > > wonderful book by string theorist Brian Greene tonight. > It puts the > > > book on screen and, if it’s anything like the book, > viewers will > > > understand how reality is put together. It’s a trip. > Great way to take > > > your mind off treatment for a while. > > > Got all my drugs preapproved today. I wish they’d start > me on the damn > > > interferon so I can see how bad it will be. This week or > next week, I > > > guess. > > > Later, > > > Keith

Response:

Nice pic Russ! (I meant of you and Kiak!!!) I loved the Mars pic too!!! — Regards,        Shawn . "Russ Tanner" <sourdo55 at yahoo.com> wrote in message news:vptg1qinooa12e@corp.supernews.com… > Well good luck on your start date Keith. I’m eagerly

awaiting the 12-18 hour > after Monday night post shot side affects to start raising hell. Grit your > teeth man, dig in and hang on. I’m not going to bullshit anyone, somedays > this combo/mombo sides can be some tough stuff. > Space Time, the universe, all interesting concepts, most way over my head. > But I like math and problems and solving them. It amazes me to the new ideas > that pop up about the universe. Oh, BTW, I have a very

nice Hubble Telescope > shot of Mars at it’s closest to Earth on my desk top. Way cool pic…. > http://www.mtaonline.net/~rtanner/marsHubble.jpg > It really helps me to know I’m not the only miserable

person on treatment. > I’m extra lucky to have a very close friend who also is

doing the treatment. > Lately we really have been leaning on each other. Kiak

really has become my – Hide quoted text — Show quoted text -> best friend, besides all of you too.. here is a pic of her and I > http://www.mtaonline.net/~rtanner/russ&karen.jpg > I miss seeing Dez myself, I hope he is ok. > — > Russ Tanner > Palmer, Alaska > email: russ at tannersacre.com > http://www.tannersacre.com > "Keith" <rea…@mostly.com> wrote in message > news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… > > Although a new contributor to this newsgroup, I feel I got to > > know some of you through reading the zillions of posts I first > > downloaded from the group. Which makes me say, "Whatever happened to > > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > > moving on to different newsgroups" message from him. > > Also, he and others talked about physics now and then. I’m a total > > physics freak. Just want to tell anyone who might be interested that > > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > > wonderful book by string theorist Brian Greene tonight. It puts the > > book on screen and, if it’s anything like the book, viewers will > > understand how reality is put together. It’s a trip. Great way to take > > your mind off treatment for a while. > > Got all my drugs preapproved today. I wish they’d start me on the damn > > interferon so I can see how bad it will be. This week or next week, I > > guess. > > Later, > > Keith

Response:

seems like they both (his wife posted a lot) just trailed off into the aether . . . i think he past the half way point last i remember, a month or 2 ago chop —            ——————————– if u really want to email me, click on the address below              news.sonic….@Pexoteric.org         and remove the P before you click send            ——————————– "Keith" <rea…@mostly.com> wrote in message

news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… – Hide quoted text — Show quoted text -> Although a new contributor to this newsgroup, I feel I got to > know some of you through reading the zillions of posts I first > downloaded from the group. Which makes me say, "Whatever happened to > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > moving on to different newsgroups" message from him. > Also, he and others talked about physics now and then. I’m a total > physics freak. Just want to tell anyone who might be interested that > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > wonderful book by string theorist Brian Greene tonight. It puts the > book on screen and, if it’s anything like the book, viewers will > understand how reality is put together. It’s a trip. Great way to take > your mind off treatment for a while. > Got all my drugs preapproved today. I wish they’d start me on the damn > interferon so I can see how bad it will be. This week or next week, I > guess. > Later, > Keith

Response:

Russ, I’ve got the same image on my desktop. I was shocked to look up at Mars when everyone was so excited about its closeness recently. I mean, it was RED. I’ve never seen anything like that. After living all my life in bright NYC, I now find myself in a rural area upstate. I look up and I’m amazed. I had no idea all that was up there. Maybe I’ll get a telescope to celebrate the end of treatment. As for not understanding it, that’s why this Brian Greene guy is so amazing. He’s so clear that you actually understand all the complicated stuff he’s talking about. I’m psyched for the show. 8 PM PBS tonight the 28th. I read your posts (not just yours, but everyone who posts about sides, and my heart goes out to you. I lived with a guy who had AIDS and hep-C. When he did Interferon, he freaked. He was so sick. It seemed his nights were the worst. He talked a lot about his nightmares. Anyway, I’ll join you and Shawn and everyone else soon enough. More power to you. Lu Tse: I don’t quite get it but it was positive. Thanks. I’m not really sure of everyone’s stories yet, but I did note from earlier posts how to pronounce your name, so I’ve got that down. Chop, thanks for the Dez information. He seemed to really go out of his way to write — pretty eloquently — to people who posted and were in need. So many of you have. As for flamers, I’ve never responded and am always shocked that anyone does. There’s zip percentage in that. Later, Keith On Tue, 28 Oct 2003 10:15:03 -0900, "Russ Tanner" <sourdo55 at – Hide quoted text — Show quoted text -yahoo.com> wrote: >Well good luck on your start date Keith. I’m eagerly awaiting the 12-18 hour >after Monday night post shot side affects to start raising hell. Grit your >teeth man, dig in and hang on. I’m not going to bullshit anyone, somedays >this combo/mombo sides can be some tough stuff. >Space Time, the universe, all interesting concepts, most way over my head. >But I like math and problems and solving them. It amazes me to the new ideas >that pop up about the universe. Oh, BTW, I have a very nice Hubble Telescope >shot of Mars at it’s closest to Earth on my desk top. Way cool pic…. >http://www.mtaonline.net/~rtanner/marsHubble.jpg >It really helps me to know I’m not the only miserable person on treatment. >I’m extra lucky to have a very close friend who also is doing the treatment. >Lately we really have been leaning on each other. Kiak really has become my >best friend, besides all of you too.. here is a pic of her and I >http://www.mtaonline.net/~rtanner/russ&karen.jpg >I miss seeing Dez myself, I hope he is ok.

Response:

Well good luck on your start date Keith. I’m eagerly awaiting the 12-18 hour after Monday night post shot side affects to start raising hell. Grit your teeth man, dig in and hang on. I’m not going to bullshit anyone, somedays this combo/mombo sides can be some tough stuff. Space Time, the universe, all interesting concepts, most way over my head. But I like math and problems and solving them. It amazes me to the new ideas that pop up about the universe. Oh, BTW, I have a very nice Hubble Telescope shot of Mars at it’s closest to Earth on my desk top. Way cool pic…. http://www.mtaonline.net/~rtanner/marsHubble.jpg It really helps me to know I’m not the only miserable person on treatment. I’m extra lucky to have a very close friend who also is doing the treatment. Lately we really have been leaning on each other. Kiak really has become my best friend, besides all of you too.. here is a pic of her and I http://www.mtaonline.net/~rtanner/russ&karen.jpg I miss seeing Dez myself, I hope he is ok. — Russ Tanner Palmer, Alaska email: russ at tannersacre.com http://www.tannersacre.com "Keith" <rea…@mostly.com> wrote in message

news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… – Hide quoted text — Show quoted text -> Although a new contributor to this newsgroup, I feel I got to > know some of you through reading the zillions of posts I first > downloaded from the group. Which makes me say, "Whatever happened to > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > moving on to different newsgroups" message from him. > Also, he and others talked about physics now and then. I’m a total > physics freak. Just want to tell anyone who might be interested that > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > wonderful book by string theorist Brian Greene tonight. It puts the > book on screen and, if it’s anything like the book, viewers will > understand how reality is put together. It’s a trip. Great way to take > your mind off treatment for a while. > Got all my drugs preapproved today. I wish they’d start me on the damn > interferon so I can see how bad it will be. This week or next week, I > guess. > Later, > Keith

Response:

Welcome Keith, and good luck on your adventure. Dez, along with many others, are on semi permanent hiatus, waiting for a few trolls to lose interest and stop posting negative and negative engendering material. This is a good group for information and support, so keep posting and just block the trolls, as most of us have, as they continue to change their nicknames. Please don’t ever respond to trolls in any way.  Just ignore them and block their address’s. Again, best of luck.  Let us know how it goes. Steve "Keith" <rea…@mostly.com> wrote in message

news:9v5tpvcnpjvionr6ijl5sc4fnu5r2q3us7@4ax.com… – Hide quoted text — Show quoted text -> Although a new contributor to this newsgroup, I feel I got to > know some of you through reading the zillions of posts I first > downloaded from the group. Which makes me say, "Whatever happened to > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > moving on to different newsgroups" message from him. > Also, he and others talked about physics now and then. I’m a total > physics freak. Just want to tell anyone who might be interested that > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > wonderful book by string theorist Brian Greene tonight. It puts the > book on screen and, if it’s anything like the book, viewers will > understand how reality is put together. It’s a trip. Great way to take > your mind off treatment for a while. > Got all my drugs preapproved today. I wish they’d start me on the damn > interferon so I can see how bad it will be. This week or next week, I > guess. > Later, > Keith

Response:

        Although a new contributor to this newsgroup, I feel I got to know some of you through reading the zillions of posts I first downloaded from the group. Which makes me say, "Whatever happened to Dez?" I don’t see any recent posts and can’t find an "I’m well now and moving on to different newsgroups" message from him. Also, he and others talked about physics now and then. I’m a total physics freak. Just want to tell anyone who might be interested that Nova on PBS is doing a two-hour show on "The Elegant Universe", the wonderful book by string theorist Brian Greene tonight. It puts the book on screen and, if it’s anything like the book, viewers will understand how reality is put together. It’s a trip. Great way to take your mind off treatment for a while. Got all my drugs preapproved today. I wish they’d start me on the damn interferon so I can see how bad it will be. This week or next week, I guess. Later, Keith

Response:

- Hide quoted text — Show quoted text -Keith wrote: >    Although a new contributor to this newsgroup, I feel I got to > know some of you through reading the zillions of posts I first > downloaded from the group. Which makes me say, "Whatever happened to > Dez?" I don’t see any recent posts and can’t find an "I’m well now and > moving on to different newsgroups" message from him. > Also, he and others talked about physics now and then. I’m a total > physics freak. Just want to tell anyone who might be interested that > Nova on PBS is doing a two-hour show on "The Elegant Universe", the > wonderful book by string theorist Brian Greene tonight. It puts the > book on screen and, if it’s anything like the book, viewers will > understand how reality is put together. It’s a trip. Great way to take > your mind off treatment for a while. > Got all my drugs preapproved today. I wish they’d start me on the damn > interferon so I can see how bad it will be. This week or next week, I > guess. > Later, > Keith

"We have loved the stars too fondly to be fearful of the night" — "Whale Oil Beef Hooked." "Lu Tze."

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