glaucoma
Question:
I am 41 years old and have Glaucoma, the thoughts of having this depress me greatly. I was on truspot but it did not lower my pressures all that much. I am now on BetopicS. I am just wondering at what point does the doctor decide to do surgery? — Gypsy-J http://www.geocities.com/Heartland/4249/ recipes and genealogy http://www.geocities.com/Heartland/8855/index1.html Directory of all pages
Response:
Just visited the Optometrist for new glasses and was told I had lots of pigment, high pressure (30 in both eyes) and enlarged optic nerves. Haven’t gotten to an Optomologist yet to verify his findings, but he said I had all the classic signs of glaucoma. Is there any where on the web to get some more information on glaucoma? Thanks, Randy True
Response:
On 12 Jan 1997 22:12:29 GMT, tstone8…@aol.com wrote: > One thing I did find out while dieting I have to limit the intake of >water each day as that causes the presuure to go up. Along with that the >use of antihistamines is discouraged as they too cause problems with the >pressure and the beta blocker. >Terry S
I’d like to find out more about limiting your water intake. Do you have any source for this information? I’ve heard of the problem with anithistamines before (also decongestants), but I haven’t been able to find much about diet and glaucoma. Regards Keith —————————————————————— Keith Soltys — ksol…@interlog.com — http://www.interlog.com/~ksoltys/ —————————————————————— Certainly the game is rigged. Don’t let that stop you; if you don’t bet, you can’t win. –Robert A. Heinlein
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Nina, I am looking for quality information on trabeculectomy – which has been recommended to my father who has been under many treatments for many years. Is there a good source on the web? Is there a newsgroup to contact? Thanks for any help you can offer. Gary
Response:
>From: "Gypsy-J" <jcoldi…@kih.net> >Date: 12 Jan 1997 05:29:15 GMT >I am 41 years old and have Glaucoma, the thoughts of having this depress >me greatly. I was on truspot but it did not lower my pressures all that >much. I am now on BetopicS. I am just wondering at what point does the >doctor decide to do surgery?
I can only tell you from my experience at 27 that the doctor told me surgery was a no-go until the late 50s or early 60s. His explanation was that unless there were serious threats to the eyes the scare tissue from the surgery was or could potentially be worse that the disease. I believe him as other doctors have told me the same. Not sure of you medication but I have been using Timoptic .5% solution for 20 years and it has done an excellent job in controlling my pressure. Now that is not to say the occasional spike will not hit or that there may be rises but over a 20 year period it has kept mine in the 14-20 range most 16-18. One thing I did find out while dieting I have to limit the intake of water each day as that causes the presuure to go up. Along with that the use of antihistamines is discouraged as they too cause problems with the pressure and the beta blocker. Terry S
Response:
Don’t fool around with this. A pressure of 30 is serious. Let the opthamologist check it out, because one you loose vision (any amount) from glaucoma, it cannot be recovered. Proper treatment will save your eyesight. Take advantage of the help you can get NOW, before you lose your vision. Elizabeth
Response:
VCEQ…@prodigy.com (Brooke Chance) wrote: >I was 48 years old when I was diagnosed. I was on several medications >for about three months. I did not respond to medications. I had surgery >in March and June of 1995. I responded to surgery. My pressures did >great in good eye. I had to have two stitches lasered in bad eye. Both >eyes are now maintaing at 15 and below pressure. I had 20-25 before >surgery.
What sort of loss of vision and/or anatomical damage to your optic nerve head do you have or not have? >I would say that each individual is different. Trust your doctor or get >a second opinion.
I would say, before you believe much, get more than *one* more and read the medical literature (and, to a lesser degree, monitor sci.med.vision) wherein you can see what MDs say to *each other*, rather than just take what they sell to the public. >The Glaucoma Society in California, San Francisco, is >an excellant resource.
I would say greatly otherwise. It is a blatant PR outfit expressly for the collection of private donations to support obsolete IOP=dogma-supporting "scientific" research needed to keep so-oriented clinicians in practice, at the expense of the public. The following page relates to glaucoma *screening* but is highly relevant to treatment. You should not take the first paragraph at face value, though, as the material covered was organized by others on the basis of persons over 65 (something it neglects to mention): http://www.nlm.nih.gov:70/0/hstat/guide_cps/cps39.txt This page is, no doubt, covers the original report from which the material on the above page was taken: http://www.cma.ca/journals/cmaj/vol-152/1211e.htm The following page is one I composed. It is *more* relevant to older persons but, with slight augmentation which wouldn’t change the basic outlook, it would cover equally all ages: http://www.geocities/CapitolHill/1284/glaucoma.html >I want to start a support group in this regard. I found that most >patients are over 65 and retired. Us younger folks do not seem to have >many resources.
Do you want a separate group because of the medical differences of younger persons — or for the difference in sociality, lifestyle or whatever? Hopefully it would be mainly for the medical differences, but perhaps directed somewhat by differences in lifestyles. Ray
Response:
I recently had an iredectomy done in both eyes for eye pressures of 23. Yesterday my right eye was bothering me and then I developed a headache right between my eyes. Advil didn’t get rid of the headache and when I woke up this morning at 500am I saw halos around the lights. I went to see my doctor this afternoon and he said my eye pressure was 16 in both eyes. He felt the iredectomes were patent and the episode I had was not caused by my glaucoma. I am not on any eyedrops. He also said that I have some permanent vision loss in my right eye causing me to have some blurred vision. He said new glasses wouldn’t help. He said he has no idea what has caused my vision loss! My optic nerve measured 2 and 3, which he said were all within normal limits. I was wondering if anyone knows what an abnormal reading would be or some websites where I could look it up. Thanks
Response:
I was 48 years old when I was diagnosed. I was on several medications for about three months. I did not respond to medications. I had surgery in March and June of 1995. I responded to surgery. My pressures did great in good eye. I had to have two stitches lasered in bad eye. Both eyes are now maintaing at 15 and below pressure. I had 20-25 before surgery. I would say that each individual is different. Trust your doctor or get a second opinion. The Glaucoma Society in California, San Francisco, is an excellant resource. I want to start a support group in this regard. I found that most patients are over 65 and retired. Us younger folks do not seem to have many resources.
Response:
It is a hard type of Glaucoma to dx. " Plateau Iris Syndrome" I have this type. The Dr. must be very good at Gonioscopy to determine the dx. keep me posted on what you find out. John.
Response:
This person is probably a TROLL. It smells like an individual that has been previously posting in the alt.support.headaches.migraines news group as Martin Luther, Hedwig Schultz and other aliases. Don’t reply to him and definitely Don’t send this person anything personal about yourself. If it is the same person, this one is a Cyber Stalker that has been repeatedly thrown off ISP mail/newsgroups. Just a warning. If I’m wrong, I apologize. But ….. We already know how to reply to this group, thank you..!!! – Hide quoted text — Show quoted text -"……………………" wrote: > Since 1967 I have this!!!– PLEASE REPLY TO GROUP > Sent via Deja.com http://www.deja.com/ > Share what you know. Learn what you don’t.
Response:
I’d like to find out more about limiting your water intake. Do you have any source for this information? I’ve heard of the problem with anithistamines before (also decongestants), but I haven’t been able to find much about diet and glaucoma. Regards Keith I was in one of those monitored diet prgrams at one time and the doctor limited my water intake to no more than 1.5 qts per day. He stated this was due to the glaucoma. I have ask my current doctor and he too feels I should not over do the water. Terry
Response:
On Mon, 14 Sep 1998 00:54:46 GMT, kd4y…@fuse.net (Randy True) wrote: >Just visited the Optometrist for new glasses and was told I had lots >of pigment,
You mean where it shouldn’t be? >high pressure (30 in both eyes) and enlarged optic nerves.
You mean enlarged cups in their heads? >Haven’t gotten to an Optomologist yet to verify his findings, but he >said I had all the classic signs of glaucoma. >Is there any where on the web to get some more information on >glaucoma?
The Web is inundated with it — in all levels of quality. Put the term in a search engine and have at it. You can get some more specific and critical notes by putting the term into a newsgroup (Usenet) search engine. Of course, you can get heavier reading in the form of clinical journal article abstracts from Medline (free various places on the Web) and as these full articles in medical libraries. Ray
Response:
Since 1967 I have this!!!– PLEASE REPLY TO GROUP Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
Response:
On 24 Sep 1998 15:53:05 GMT, elizabe…@aol.com (Elizabe309) wrote: >Don’t fool around with this. A pressure of 30 is serious.
Not usually, necessarily. If it is, you are most likely not going to be able to do anything to prevent the results of its seriousness — with or without an ophthalmologist. Get it checked out, but don’t take the checkout on the face of it. Check what is said about the "results" in a number of other sources. But one checkout is not very likely to agree with the next somewhere else. Ray (not an eye poker but have run into quite a few) – Hide quoted text — Show quoted text -> Let the >opthamologist check it out, because one you loose vision (any amount) from >glaucoma, it cannot be recovered. Proper treatment will save your eyesight. >Take advantage of the help you can get NOW, before you lose your vision. >Elizabeth
Response:
I am a glaucoma specialist practicing in central Florida. The decision to proceed with surgery in a 41 year old is never taken lightly as the success rate of a trabeculectomy (the most commonly perfomed surgery–a "drainage flap" made in the wall of the eye) is about 80%, and they may only last between 2-10 years (I’ve seen a couple last as long as 20). Many factors enter into the decision, including extent of visual field loss, rate of field loss progression, health of the optic nerve, the severity of intraocular pressure (IOP) elevations, and the patient’s tolerance of medications. If you’re only on one drop, to lower IOP, there are still several others out there that may be of benefit. Also, certain types of glaucoma (e.g. pigmentary glaucoma) respond better than others to laser trabeculoplasty, an office-based laser procedure that can help to control IOP over a 2-5 yr period. If you have any more questions, please feel free to e-mail me directly: eye guy…@aol.com. Good Luck, Rick C., MD
Response:
Dear Lim About 15 years ago I was suffering from glaucoma also. My doc adviced me to take the medicine ,,Betamann 6%", wich was available in german pharmacies at that time. My IOP at that time was at 60!!!!. This medicine could keep me free of operation for at least 8 years, when the IOP increased to 70(!!!!) and an operation to remove the right eye could no longer be lingered. The result of that treatment is now that I`m wearing a glass – eye on my left side. The right eye functions well. The medicine mentioned above kept me ,,pain – free" for a very long time, after wich I finally got a glaucoma – attack, wich caused me to vomit at least 15 times in one night. This made me decide go to hospital, where doc`s decided to remove the eye, taking into consideration also the very painful headache caused by the attack. Hoping for all the best for you, I will close now. I hope to hear from you. friendly Yours Klaus – Peter Naumann from Duisburg/Germany expa…@my-Deja.com schrieb: – Hide quoted text — Show quoted text -> — > On Sat, 20 Nov 1999 23:15:43 Lim, Say Ping wrote: > > Message from the Deja.com forum: > > alt.support.glaucoma > > Your subscription is set to individual email delivery > >I am male, 45, recently diagnosed to havew Glaucoma. That was a shock. My > >right eye is half blind but my left eye is good. unfortunately, the test I > >tookd three days ago indicated the IOP for L/R are > >22, 27 respectively. The doc add one more eye drip in addition to Xalatan > >and Timolol. And suggests that > >I may need operation on my right eye in three weeks time if the pressure do > >not come down. > >Any other way to bring the pressure down other than those drips to aviod > >surgery?? Help!! > >LIM SP > > _____________________________________________________________ > > Deja.com: Before you buy. > > http://www.deja.com/ > > * To modify or remove your subscription, go to > > http://www.deja.com/edit_sub.xp?group=alt.support.glaucoma > > * Read this thread at > > http://www.deja.com/thread/%3C816e50%24p77%241%40clematis.singnet.com… > They can do laser operation, laser trabeculapasty, something like that, ask the doctor. It doesn’t feel like an operation. In doctor’s office. > –== Sent via Deja.com http://www.deja.com/ ==– > Share what you know. Learn what you don’t. > Sent via Deja.com http://www.deja.com/ > Before you buy.
Response:
El Peso inquired, in part: > when I woke up this morning at 500am I saw halos around the lights. >I went to see my doctor this afternoon and he said my eye pressure was >16 in both eyes. He felt the iredectomes were patent and the episode I >had was not caused by my glaucoma.<
snip > He said he has no idea what has caused my vision loss! <
I’m sure the pros will answer your post, but for what my non-pro two cents is worth I would not be comfortable with one pressure check. Pressure can vary greatly from one time of day (or night) to another. You may have spikes of dangerously high pressure which would only be caught by "serial tonometry" in which pressures are checked frequently over a 24 hour period. Again, as a non-pro, it is my understanding that the cup-to-disc ratio about which you also inquired is normally around 3 (.3). Hope this gives you something to work with until you hear further. I know I can’t rest well until I get my questions answered, so this may help you in your thinking.
Response:
"Gypsy-J" <jcoldi…@kih.net> wrote: >I am 41 years old and have Glaucoma, the thoughts of having this depress >me greatly. I was on truspot but it did not lower my pressures all that >much. I am now on BetopicS. I am just wondering at what point does the >doctor decide to do surgery?
Not an eye-care practitioner: Some MDs do laser surgery as an alternative to medication from the start. Depends on the MD and on the specifics of the case. Do you have actual sight loss, how high are your pressures and are their any other special particulars to your problem? Ray
Response:
I was diagnosed with high ocular pressure about a year ago. Dr. Put me on Xalatan for about 4 months with no improvement. Field range test was normal. Switched to Alphagan. Have noticed blurry vision although pressure is down to 19 from 25. Has anyone experienced loss of vision or blurred vision as I did not experience these side effects with Xalatan? Any comments?
Response:
Drug interactions vary among people. I use Xalatan, have some field vision loss and optic nerve damage. Sometimes my vision gets a little blurry, usually after intensive eye work (reading, working on the computer, etc.) But I don’t know if that is due to the glaucoma, the xalatan, working my eyes too much, or a combination. Talk to your dr. about the problem, and if you don’t like what he says, get a second opinion from another dr.
Response:
– – Hide quoted text — Show quoted text -On Sat, 20 Nov 1999 23:15:43 Lim, Say Ping wrote: > Message from the Deja.com forum: > alt.support.glaucoma > Your subscription is set to individual email delivery >I am male, 45, recently diagnosed to havew Glaucoma. That was a shock. My >right eye is half blind but my left eye is good. unfortunately, the test I >tookd three days ago indicated the IOP for L/R are >22, 27 respectively. The doc add one more eye drip in addition to Xalatan >and Timolol. And suggests that >I may need operation on my right eye in three weeks time if the pressure do >not come down. >Any other way to bring the pressure down other than those drips to aviod >surgery?? Help!! >LIM SP > _____________________________________________________________ > Deja.com: Before you buy. > http://www.deja.com/ > * To modify or remove your subscription, go to > http://www.deja.com/edit_sub.xp?group=alt.support.glaucoma > * Read this thread at > http://www.deja.com/thread/%3C816e50%24p77%241%40clematis.singnet.com…
They can do laser operation, laser trabeculapasty, something like that, ask the doctor. It doesn’t feel like an operation. In doctor’s office. –== Sent via Deja.com http://www.deja.com/ ==– Share what you know. Learn what you don’t. Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
Randy Check out the Glaucoma Research Foundation (www.glaucoma.org) for a wealth of information on glaucoma. Good luck. Karen – Hide quoted text — Show quoted text ->Just visited the Optometrist for new glasses and was told I had lots >of pigment, high pressure (30 in both eyes) and enlarged optic nerves. >Haven’t gotten to an Optomologist yet to verify his findings, but he >said I had all the classic signs of glaucoma. >Is there any where on the web to get some more information on >glaucoma?
Response:
On Tue, 22 Sep 1998 20:47:21 GMT, personnel…@my-dejanews.com wrote: …………. > Randy, If I were you I would make an appointment right away with a >opthamologist. This disease is not called the silent killer for nothing, you >can find out all the information after you see a Dr. and he tells you just >what the problem is,
Now, there’s faith in the MD — "just what the problem is" — just like that. "The problem is": If there’s that kind of problem, there’s probably no fix. That’s probably as near to "just what the problem is" as you’ll get by talking to the doctor. Ray – Hide quoted text — Show quoted text ->I would not bother going to a optomotrist anymore. Good >luck let us know how you make out. Personnelman >—–== Posted via Deja News, The Leader in Internet Discussion ==—– >http://www.dejanews.com/rg_mkgrp.xp Create Your Own Free Member Forum
Response:
In article <35fc67ba.6665…@nntp.fuse.net>, kd4y…@fuse.net wrote: > Just visited the Optometrist for new glasses and was told I had lots > of pigment, high pressure (30 in both eyes) and enlarged optic nerves. > Haven’t gotten to an Optomologist yet to verify his findings, but he > said I had all the classic signs of glaucoma. > Is there any where on the web to get some more information on > glaucoma? > Thanks, > Randy True > Randy If I was you I would see a Opthamologist as soon as possible and then
get all the information after he tells you what the problem is. If you have glaucoma it is imperitive to get treated as early as possible, my pressures are 14 and 12 and I am still going bling so again I would make an appointment right away. Personnlman —–== Posted via Deja News, The Leader in Internet Discussion ==—– http://www.dejanews.com/rg_mkgrp.xp Create Your Own Free Member Forum
Response:
To Gypsy: The Eye GuyEye Guy111 wrote: > I am a glaucoma specialist practicing in central Florida. "snip"
If you’re only on one drop, to lower IOP, there are still several > others out there that may be of benefit. "snip"
If you have any more questions, please feel > free to e-mail me directly: eye guy…@aol.com. Good Luck, Rick C., > MD
Gypsy, The Eye Guy makes sense. I assume you have been recently diagnosed. I think it is normal to be anxious about the future when you face a potentially sight-robbing condition with about 40 years ahead of you. I am 43 and have had glaucoma for 11 years. I am currently taking three meds in various combinations up to four times each day. I had a laser iridotomy procedure that was unsuccessful due my "plateau iris syndrome." (Actually, the lack of success helped diagnos the condition) My pressure are now routinely in the upper teens and low twenties — it’s the best we can do. Yet, I have had very little loss of visual field and my optic nerves are stable. You see, each patient is different. There is no magic number above which damage always occurs or below which the eye is safe. Trust your doctor, but become informed. I know my doctors and I had to learn about my unusual situation by keeping an open mind and open communication. I am lucky, because before my condition was correctly diagnosed, another doctor recommended immediate filtration surgery. This could have been disastrous given my particular condition. Hang in there. Read the questions and answers in this ng and in the web sites that exist. Email me for the addresses of a couple of good ones. I know outcomes vary widely, but anxiety usually decreases with time, and knowledge, and understanding. At least mine has. Good luck, Nina
Response:
ElPeso, I hope that the possibility of "Plateau Iris Syndrome" has been addressed by your doc. Vern In article <26557-36005B1A…@newsd-152.iap.bryant.webtv.net>, ElP…@webtv.net writes: – Hide quoted text — Show quoted text ->Subject: glaucoma >From: ElP…@webtv.net >Date: Wed, 16 Sep 1998 19:43:06 -0500 (CDT) > I recently had an iredectomy done in both eyes for eye pressures of >23. > Yesterday my right eye was bothering me and then I developed a >headache right between my eyes. Advil didn’t get rid of the headache >and when I woke up this morning at 500am I saw halos around the lights. >I went to see my doctor this afternoon and he said my eye pressure was >16 in both eyes. He felt the iredectomes were patent and the episode I >had was not caused by my glaucoma. I am not on any eyedrops. > He also said that I have some permanent vision loss in my right eye >causing me to have some blurred vision. He said new glasses wouldn’t >help. He said he has no idea what has caused my vision loss! My optic >nerve measured 2 and 3, which he said were all within normal limits. I >was wondering if anyone knows what an abnormal reading would be or some >websites where I could look it up. Thanks
Vernon C. Hammond,O.D. McAllen, TX 78501
Response:
In article <35fc67ba.6665…@nntp.fuse.net>, kd4y…@fuse.net wrote: > Just visited the Optometrist for new glasses and was told I had lots > of pigment, high pressure (30 in both eyes) and enlarged optic nerves. > Haven’t gotten to an Optomologist yet to verify his findings, but he > said I had all the classic signs of glaucoma. > Is there any where on the web to get some more information on > glaucoma? > Thanks, > Randy True > Randy, If I were you I would make an appointment right away with a
opthamologist. This disease is not called the silent killer for nothing, you can find out all the information after you see a Dr. and he tells you just what the problem is, I would not bother going to a optomotrist anymore. Good luck let us know how you make out. Personnelman —–== Posted via Deja News, The Leader in Internet Discussion ==—– http://www.dejanews.com/rg_mkgrp.xp Create Your Own Free Member Forum
Response:
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