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Normal Tension Glaucoma

Question:

I was diagnosed Normal Tension Glaucoma. I have 16mm each eye. Is it a very damaging type of glaucoma? I’m 25 years old. Twenty-five years from now will I still see? I’d like to ear from people suffering the same type of disease. Thank you

Response:

Paulo, I had same diagnosis at about age 63.  I tried various drops and did not like side effects.  Now using xalatan drops, not bothered by side effects, and pressures running about 12-13mm.  My doc said that my condition has not gotten worse in 4 years since diagnosis. I recommend that you see a glaucoma specialist soon if you have not done so. I suspect that  with proper treatment they can preserve your vision. Good luck. Dave – Hide quoted text — Show quoted text -Paulo Mestre wrote in message <983555564.434941@news>… >I was diagnosed Normal Tension Glaucoma. I have 16mm each eye. >Is it a very damaging type of glaucoma? >I’m 25 years old. >Twenty-five years from now will I still see? >I’d like to ear from people suffering the same type of disease. >Thank you

Response:

Hi, I have normal tension glaucoma in both eyes.  I’m 51 diagnosed about 2 years ago. My left eye is worse with significant optic nerve damage and significant loss of field of vision that is still deteriorating–but my right is fine. My pressures were in the mid to upper  teens but my glaucoma specialist hasn’t been able to bring it down to the low teens he wants with drops, so a trabeculectomy was proposed which I declined. While the situation should be monitored by a specialist, I would reserve serious worries for the time when field of vision begins to deteriorate. C. Lee 000000000000000000000000000000 – Hide quoted text — Show quoted text -Paulo Mestre wrote: > I was diagnosed Normal Tension Glaucoma. I have 16mm each eye. > Is it a very damaging type of glaucoma? > I’m 25 years old. > Twenty-five years from now will I still see? > I’d like to ear from people suffering the same type of disease. > Thank you

Response:

Paulo,   I received the same diagnosis at about age 35.  I’m now 64 and my vision is still excellent.  Over the past 30 years I’ve had two rounds of argon laser surgery in both eyes and have taken medication every single day, at first Timoptic twice a day in both eyes, currently Cosopt twice a day in both eyes and Xalatan once a day in both eyes.  So you see that a diagnosis of  normal tension glaucoma doesn’t automatically mean you should go out and get a cane and a guide dog.      I think the best course is to find an ophthalmologist you feel comfortable with, and in whom you have confidence, and then follow his or her instructions.  Sometimes the drops and the office visits and tests are a nuisance, but keeping your eyesight is worth the trouble. It can get expensive, too, so I hope you have or can get good medical coverage!     Best of luck to you,     Don Singleton – Hide quoted text — Show quoted text -Paulo Mestre wrote: > I was diagnosed Normal Tension Glaucoma. I have 16mm each eye. > Is it a very damaging type of glaucoma? > I’m 25 years old. > Twenty-five years from now will I still see? > I’d like to ear from people suffering the same type of disease. > Thank you

Response:

Hi, I’d be interested in hearing how you consider the trabeculectomy done six months ago–successful, successful but not  worth pains, side-effects, etc.; not successful… I declined the same procedure and I have normal tension glaucoma with deteriorating loss of field of vision in one eye  at age 51. C. Lee CCCCCCCCCCCCCCCCCCCC – Hide quoted text — Show quoted text -Earle D Jones wrote: > In article <3AA06067.5421E…@sprynet.com>, Donald Singleton > <donal…@sprynet.com> wrote: > > Paulo, > >   I received the same diagnosis at about age 35.  I’m now 64 and my > > vision is still excellent.  Over the past 30 years I’ve had two rounds > > of argon laser surgery in both eyes and have taken medication every > > single day, at first Timoptic twice a day in both eyes, currently Cosopt > > twice a day in both eyes and Xalatan once a day in both eyes.  So you > > see that a diagnosis of  normal tension glaucoma doesn’t automatically > > mean you should go out and get a cane and a guide dog. > >      I think the best course is to find an ophthalmologist you feel > > comfortable with, and in whom you have confidence, and then follow his > > or her instructions.  Sometimes the drops and the office visits and > > tests are a nuisance, but keeping your eyesight is worth the trouble. > > It can get expensive, too, so I hope you have or can get good medical > > coverage! > >     Best of luck to you, > >     Don Singleton > * > Don:  Hi! Your case sounds *very much* like mine.  I was diagnosed at 39 > and I’m now 69 with 20:20 vision.  I have taken every drop in the book! > I was also a test subject at Alza when "Ocuserts" were in clinical > trials. > I have had cataract surgery with lens replacement in both eyes. > I had argon laser trabeculoplasty in both eyes, with little success. > About six months ago, I had trabeculectomy surgery.  This is the > procedure where they cut a little trapdoor valve in the upper part of > the sclera (white) of the eye, which reduces the resistance to fluid > outflow. > I now take *no* drops at all — and my pressures are typically 16 or > 17mm. > earle > *

Response:

In article <3AAAE9BC.45633…@bellatlantic.net>, clear…@bellatlantic.net wrote: > Hi, > I’d be interested in hearing how you consider the trabeculectomy done six > months ago–successful, successful but not  worth pains, side-effects, > etc.; > not successful… > I declined the same procedure and I have normal tension glaucoma with > deteriorating loss of field of vision in one eye  at age 51. > C. Lee

* Hi:  Here is a copy of a message that I posted earlier.  As you know the trabeculectomy procedure creates a ‘bleb’.  I was asked whether I had any problems with the bleb. *** I have had no problems with the bleb in either eye.  So far, so good. There was a slight "foreign object" feeling for a few days after surgery. My trabeculectomy surgeries were in August, 2000 (left eye) and December, 2000 (right eye). Today my eyes feel totally normal.  And my central visual acuity is 20:20 in each eye. My pressures are usually 16 or 17mm with *no* eyedrops.  It is amazing to me to get out of bed in the morning without administering several drops in each eye.  I have been taking drops since 1970! I also have had cataract surgery in both eyes, with lens implants.  The lenses were selected to give me about one diopter of myopia, which means I can read and work at my computer without glasses.  I wear glasses for distant vision (driving). I wish that everyone could be as fortunate as I. *** Good luck! earle *

Response:

Earle, Glad to hear the info about the bleb!  I had a trab in the left eye in Nov and was beginning to wonder if my eye would ever feel "normal" again!  Not painful, just annoying, although I do chalk some of that up to the InflamaseForte the doc has me on.  I’m down to three times a day for that now!  I’m going to be getting the other eye done in a couple of months (or sooner).  My pressures aren’t really high (17-20), but since I have such high myopia, I do have some optic nerve damage. Pressure in the trab eye is running 8-10. A cataract is starting in the left eye – don’t know when that will need to be fixed, but I’m actually looking forward to the surgery in order to get better vision, at least in one eye! Sherry Earle D Jones <earle.jo…@home.com> wrote in <earle.jones-0F3946.11545911032…@news.palto1.sfba.home.com>: <snip> – Hide quoted text — Show quoted text ->*** >I have had no problems with the bleb in either eye.  So far, so good. >There was a slight "foreign object" feeling for a few days after >surgery. >My trabeculectomy surgeries were in August, 2000 (left eye) and >December, 2000 (right eye). >Today my eyes feel totally normal.  And my central visual acuity is >20:20 in each eye. My pressures are usually 16 or 17mm with *no* >eyedrops.  It is amazing to me to get out of bed in the morning >without administering several drops in each eye.  I have been taking >drops since 1970! >I also have had cataract surgery in both eyes, with lens implants. >The lenses were selected to give me about one diopter of myopia, which >means I can read and work at my computer without glasses.  I wear >glasses for distant vision (driving). >I wish that everyone could be as fortunate as I. >*** >Good luck! >earle >*

Response:

   I’m happy for you, Earle — and I envy you freedom from drops.  And I hope Paulo will draw encouragement from the stories of us old guys.  I remember how depressed and worried I was when I was first diagnosed, and how good it felt when I realized it was a problem that could be handled.     Best wishes,      Don – Hide quoted text — Show quoted text -Earle D Jones wrote: > In article <3AA06067.5421E…@sprynet.com>, Donald Singleton > <donal…@sprynet.com> wrote: > > Paulo, > >   I received the same diagnosis at about age 35.  I’m now 64 and my > > vision is still excellent.  Over the past 30 years I’ve had two rounds > > of argon laser surgery in both eyes and have taken medication every > > single day, at first Timoptic twice a day in both eyes, currently Cosopt > > twice a day in both eyes and Xalatan once a day in both eyes.  So you > > see that a diagnosis of  normal tension glaucoma doesn’t automatically > > mean you should go out and get a cane and a guide dog. > >      I think the best course is to find an ophthalmologist you feel > > comfortable with, and in whom you have confidence, and then follow his > > or her instructions.  Sometimes the drops and the office visits and > > tests are a nuisance, but keeping your eyesight is worth the trouble. > > It can get expensive, too, so I hope you have or can get good medical > > coverage! > >     Best of luck to you, > >     Don Singleton > * > Don:  Hi! Your case sounds *very much* like mine.  I was diagnosed at 39 > and I’m now 69 with 20:20 vision.  I have taken every drop in the book! > I was also a test subject at Alza when "Ocuserts" were in clinical > trials. > I have had cataract surgery with lens replacement in both eyes. > I had argon laser trabeculoplasty in both eyes, with little success. > About six months ago, I had trabeculectomy surgery.  This is the > procedure where they cut a little trapdoor valve in the upper part of > the sclera (white) of the eye, which reduces the resistance to fluid > outflow. > I now take *no* drops at all — and my pressures are typically 16 or > 17mm. > earle > *

Response:

In article <3AA06067.5421E…@sprynet.com>, Donald Singleton – Hide quoted text — Show quoted text -<donal…@sprynet.com> wrote: > Paulo, >   I received the same diagnosis at about age 35.  I’m now 64 and my > vision is still excellent.  Over the past 30 years I’ve had two rounds > of argon laser surgery in both eyes and have taken medication every > single day, at first Timoptic twice a day in both eyes, currently Cosopt > twice a day in both eyes and Xalatan once a day in both eyes.  So you > see that a diagnosis of  normal tension glaucoma doesn’t automatically > mean you should go out and get a cane and a guide dog. >      I think the best course is to find an ophthalmologist you feel > comfortable with, and in whom you have confidence, and then follow his > or her instructions.  Sometimes the drops and the office visits and > tests are a nuisance, but keeping your eyesight is worth the trouble. > It can get expensive, too, so I hope you have or can get good medical > coverage! >     Best of luck to you, >     Don Singleton

* Don:  Hi! Your case sounds *very much* like mine.  I was diagnosed at 39 and I’m now 69 with 20:20 vision.  I have taken every drop in the book!   I was also a test subject at Alza when "Ocuserts" were in clinical trials. I have had cataract surgery with lens replacement in both eyes. I had argon laser trabeculoplasty in both eyes, with little success. About six months ago, I had trabeculectomy surgery.  This is the procedure where they cut a little trapdoor valve in the upper part of the sclera (white) of the eye, which reduces the resistance to fluid outflow. I now take *no* drops at all — and my pressures are typically 16 or 17mm. earle *

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