Just Diagnosed
Question:
Bryan, I was about 31 years old when diagnosed, and am now 67. While there has been some deterioration of my visual fields as demonstrated on examinations, I still see just fine. Follow doctor’s orders, and don’t be upset! Don Singleton – Hide quoted text — Show quoted text -Bryan Llewellyn wrote: > Hi, > I have just been told I have got Claucoma in my left eye. They are going to > refer me to another doctor to find out what medicine to put me on. I had > trouble with one test, but what if they are wrong what will this medicine > do? Are there any side effects? > Glad for any comments. > Bryan
Response:
Hi, I have just been told I have got Claucoma in my left eye. They are going to refer me to another doctor to find out what medicine to put me on. I had trouble with one test, but what if they are wrong what will this medicine do? Are there any side effects? Glad for any comments. Bryan
Response:
On Sun, 04 Oct 1998 09:49:09 +0000, Donald Singleton <donal…@sprynet.com> wrote: ………. > Pardon me, but did I just hear the pot calling the kettle black?
Dear Pot, did I hear you whistle? Ray
Response:
In article <405b3ae…@mk-nntp-2.news.uk.tiscali.com>, "Bryan Llewellyn" <b.llewel…@tiscali.co.uk> wrote: > I have just been told I have got Claucoma in my left eye. They are going to > refer me to another doctor to find out what medicine to put me on. I had > trouble with one test, but what if they are wrong what will this medicine > do? Are there any side effects?
There are often side effects to the various drops, and you may have to try 2 o3 3 medications to find out the one that suits you best.
Response:
Hi, I`m a 38 year old male who has just been diagnosed with glaucoma in the right eye. My father was diagnosed with it about ten years ago, he is currently 73 years old. My doctor has arranged for me to have a field test in two weeks time and to have photos taken of my eyes. She has put me on eye drops to be used every morning. The name of the eye drops is TIMOLOL. The reason that I decided to go and have an eye examination done, apart from the fact that my father was diagnosed in the past, was that I felt pressure from the right eye lid onto the eye. It sometimes felt as if there was a slight muscle spasm occurring in my eye lid.
Response:
Raymond A. Chamberlin wrote: > On 1 Oct 1998 10:05:38 GMT, halt…@aol.com (Halterb) wrote: > …………. > >I note that here again we have a right eye giving trouble (one of my frequent > >observations). > This guy tends to observe whatever relates to his own experience.
Pardon me, but did I just hear the pot calling the kettle black?
Response:
– Regards, Danny. Just because you imagine everyone is out to get you doesn’t mean they aren’t ;.) Raymond A. Chamberlin <ra…@tsoft.net> wrote in article <3616f90a.5716…@nntp3.tsoft.net>… > On 1 Oct 1998 10:05:38 GMT, halt…@aol.com (Halterb) wrote: > Which may not be related to any glaucoma. To have glaucoma, you have > to have defective tissue in or supporting the eye-end of an optic > nerve — way inside, at the back of your eye. > Ray
AHA!! So we finally know what Ray’s definition of glaucoma is.. My question is: why does this *have* to be so?? And as well; on whose authority?? 
Hello to many members of the group. I’ve been having trouble for quite some time with my computer and haven’t been able to log on. What ever happen to the battles between ray and Eyeguy?? did Ray finally win out?
Response:
On Tue, 29 Sep 1998 16:14:46 +1000, David Gilmore <blu…@netspace.net.au> wrote: >Hi, > I`m a 38 year old male who has just been diagnosed with glaucoma in the >right eye. My father was diagnosed with it about ten years ago, he is >currently 73 years old. My doctor has arranged for me to have a field >test in two weeks time and to have photos taken of my eyes.
This sounds as if you were so diagnosed simply on the basis of your IOPs (intraocular pressures). Was that the case. What were their values? How much concern you should have, whether that diagnosis is of practical consideration, and what treatment is appropriate depend on those values and what is determined from the field tests and ophthalmoscopic (and possibly goniometric) examination of your eyes. >She has put >me on eye drops to be used every morning. The name of the eye drops is >TIMOLOL. > The reason that I decided to go and have an eye examination done, apart >from the fact that my father was diagnosed in the past, was that I felt >pressure from the right eye lid onto the eye. It sometimes felt as if >there was a slight muscle spasm occurring in my eye lid.
That doesn’t sound directly related to glaucoma at all, but I suppose it could relate indirectly. Ray (not an eye professional but have glaucoma and have read a fair amount on it)
Response:
In article <3616f6fc.5190…@nntp3.tsoft.net>, ra…@tsoft.net (Raymond A. Chamberlin) wrote: – Hide quoted text — Show quoted text -> On Tue, 29 Sep 1998 16:14:46 +1000, David Gilmore > <blu…@netspace.net.au> wrote: > >Hi, > > I`m a 38 year old male who has just been diagnosed with glaucoma in the > >right eye. My father was diagnosed with it about ten years ago, he is > >currently 73 years old. My doctor has arranged for me to have a field > >test in two weeks time and to have photos taken of my eyes. > This sounds as if you were so diagnosed simply on the basis of your > IOPs (intraocular pressures). Was that the case. What were their > values? How much concern you should have, whether that diagnosis is > of practical consideration, and what treatment is appropriate depend > on those values and what is determined from the field tests and > ophthalmoscopic (and possibly goniometric) examination of your eyes. > >She has put > >me on eye drops to be used every morning. The name of the eye drops is > >TIMOLOL. > > The reason that I decided to go and have an eye examination done, apart > >from the fact that my father was diagnosed in the past, was that I felt > >pressure from the right eye lid onto the eye. It sometimes felt as if > >there was a slight muscle spasm occurring in my eye lid. > That doesn’t sound directly related to glaucoma at all, but I suppose > it could relate indirectly. > Ray (not an eye professional but have glaucoma and have read a fair > amount on it) >I have used Timolol for fourteen years and have had no side effects or pain as
other medications have. I have open angle glaucoma. ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
Response:
Hi There, Have same – problem, I am 31 y old and just have been diagnosed in the left eye, Right seems to better – but there was also some nerve damage observed. I did the thorough checkup of my eyes because I am now 7 yrs diabetic and I knew that I can have several different types of eye complications. Unfortunately …. HRT scan showed that left eye as "borderline" and right as ok. But later another test (GDX) showed that both eyes have some nerve damage. I have plenty of different results with me but so far do not understand what they mean. Doctor did not have time to really brief me what they find out or what each measure really means or what my perspectives are. I just know that this is relatively early stage (I don’t have yet any vision problems). Unfortunately my case seems to be more problematic becuase IOP are within normal range (i did 2 day tests, 5 times a day and both eyes were around 15 all the time). Anyway doctor decided that since it is now recomended to lower IOP even if they are in the "normal" limit – so I am now on Xalatan. After next 10 days I will have another IOP tests to see if it works. Anyway my questions are: 1. I am 31 and I intend to live long – can I go for say next 40 yrs without getting really big vision problems due to glaucoma? I know knowbody can really predict – but I am interested if say my chances are 10% or 50% or 80%? 2. What are most important of the factors that I had measured (apart from IOP)? Cup/disk ratio, Disk area, cup area? NFI, TSNIT????? hell I don’t have idea what they mean – and I am type that really wants to know what the hell is happening. 3. How important is to keep same hour of Xalatan drops? I live active life so sometimes I take it at 8pm, other day I take it at 11pm – does it make a difference? Thanks for all info / advice Jarek
Response:
David Gilmore wrote: >I`m a 38 year old male who has just been diagnosed with glaucoma in the >right eye. My father was diagnosed with it about ten years ago, he is >currently 73 years old. My doctor has arranged for me to have a field >test in two weeks time and to have photos taken of my eyes. She has put >me on eye drops to be used every morning. The name of the eye drops is >TIMOLOL. > The reason that I decided to go and have an eye examination done, apart >from the fact that my father was diagnosed in the past, was that I felt >pressure from the right eye lid onto the eye. It sometimes felt as if >there was a slight muscle spasm occurring in my eye lid.<
Couple of comments. Sounds somewhat like my history, age, father, right eye, Timolol, etc. I was diagnosed 20 years ago but have had no problems to speak of. Pressure is well under control and vision remains excellent. You are wise to have the field test. Ask the doctor about the condition of the interior of your eye, the optic "disc", retina, drainage ducts, etc. Keep a record of your pressure readings and the time of day done. I note that here again we have a right eye giving trouble (one of my frequent observations). Also, I was on generic Timolol briefly and did not do well with it–eyes felt most uncomfortable, stiff, swollen. I would suggest you consider genuine Timoptic if there is the slightest question. You might also ask yourself if you sleep on the right side of your face–this may be the source of the feeling you describe, due to several hours pressure on the eye. (Not a professional response)
Response:
"Bryan Llewellyn" <b.llewel…@tiscali.co.uk> wrote in message <news:405b3ae8_1@mk-nntp-2.news.uk.tiscali.com>… > Hi, > I have just been told I have got Claucoma in my left eye. They are going to > refer me to another doctor to find out what medicine to put me on. I had > trouble with one test, but what if they are wrong what will this medicine > do? Are there any side effects? > Glad for any comments. > Bryan
Even if you specialist is incorrect and you are started on medicines in error, they essentially all work by lowering your eye pressure to slow or prevent further optic nerve damage. On the other hand, different medications have different side effects. I can’t answer what the side effects are until you tell us what medicine they want to start you on. –Rick Cohn, MD Glaucoma Specialist Winter Park, FL
Response:
"Jarek" <jare…@gazeta.pl> wrote in message
news:5989125d.0403210955.22ce7488@posting.google.com… – Hide quoted text — Show quoted text -> Hi There, > Have same – problem, I am 31 y old and just have been diagnosed in the > left eye, Right seems to better – but there was also some nerve damage > observed. > I did the thorough checkup of my eyes because I am now 7 yrs diabetic > and I knew that I can have several different types of eye > complications. Unfortunately …. HRT scan showed that left eye as > "borderline" and right as ok. But later another test (GDX) showed that > both eyes have some nerve damage. I have plenty of different results > with me but so far do not understand what they mean. Doctor did not > have time to really brief me what they find out or what each measure > really means or what my perspectives are. I just know that this is > relatively early stage (I don’t have yet any vision problems). > Unfortunately my case seems to be more problematic becuase IOP are > within normal range (i did 2 day tests, 5 times a day and both eyes > were around 15 all the time). Anyway doctor decided that since it is > now recomended to lower IOP even if they are in the "normal" limit – > so I am now on Xalatan. After next 10 days I will have another IOP > tests to see if it works. > Anyway my questions are: > 1. I am 31 and I intend to live long – can I go for say next 40 yrs > without getting really big vision problems due to glaucoma? I know > knowbody can really predict – but I am interested if say my chances > are 10% or 50% or 80%? > 2. What are most important of the factors that I had measured (apart > from IOP)? Cup/disk ratio, Disk area, cup area? NFI, TSNIT????? hell I > don’t have idea what they mean – and I am type that really wants to > know what the hell is happening. > 3. How important is to keep same hour of Xalatan drops? I live active > life so sometimes I take it at 8pm, other day I take it at 11pm – does > it make a difference? > Thanks for all info / advice > Jarek
Dr Cohn has given you excellent advice. You are wise to take the precautions to screen for complications early. In case you are not already aware, there are tons of useful information relevant to your case in the world wide web. Just use one of the search engines such as google, type in keys words such as low tension glaucoma, HRT, GDX, ete etc, and you will be delighted with the results. Good luck. Sun Chong Hong, a fellow glaucoma patient.
Response:
Hi, Thanks for info and encouragement. For the last 10 days I ve had lots of questions popping to my head – especially as I wrote that I feel I did not get sufficient info from my doc yet. Some of the questions / worries are below, so would welcome all input but I will try to get this info from him – have another appointement in 10 days time. I have tried to look and some stats on the web and get info on the level of progression of glaucoma yearly. All info I found was that according to Mayo Clinic research people treated for glaucoma in the very early stage have 14% chances of getting one eye blind within 20yrs. (If glaucoma is detected late then this probablility is 54%) In some other study I’ve found that on avarage vision loss is around 2-3% yearly (study was about some other glaucoma stuff and stated that this info is not yet confirmed by thorough research). That does not look too encouraging (means that 10yrs usually brings significant changes). Hmm, well my attitude is that I will try to do all possible to stop progression and try not to worry about things I cannot control. In my case (diabetes) i will try to control it even better because I suspect this could be major factor of nerve damage (will not forget eye drops though of course). Are there any lifetime changes advised for glaucoma? Things I should / should not do/eat/drink? Drugs (medicins) you cannot take. Unproven but harmless herbal remdies etc? Thanks again Jarek – Hide quoted text — Show quoted text -> Most of us concentrate on the C/D ratio, but really, it is > the appearance of your nerve, especially the health of the rim that > matters…that is not labeled numerically but rather descriptively by > most docs. I can’t give you exact percentages of your risk of losing > vision over a lifetime, but I can tell you that studies have shown > that lowering IOP in low tension glaucoma does help to slow > progressive visual field loss. The most important thing is to look > for progressive changes on the HRT and GDX as well as on visual > fields. Relax…it sounds like you are doing all of the right things. > You may want to seek out an ophthalmologist who has more time to > answer your questions. There are some of us out there. > Don’t worry about the specific time you use your Xalatan. I > tell patients to put it in right before going to bed, but if you’re > off by an hour or two, don’t worry. At least you’re using it. Take > care, > Rick Cohn, MD > Glaucoma Specialist > Winter Park, FL
Response:
On 1 Oct 1998 10:05:38 GMT, halt…@aol.com (Halterb) wrote: …………. >I note that here again we have a right eye giving trouble (one of my frequent >observations).
This guy tends to observe whatever relates to his own experience. Only my *left* eye has any glaucoma, which is presently properly defined as a particular sort of loss of vision correlating to a particular abnormality in the head of an optic nerve, not as an eye with higher than average IOP. Let Halterb show us his data establishing that right eyes go more often that left ones from glaucoma (not that it would be useful). >Also, I was on generic Timolol briefly and did not do well with >it–eyes felt most uncomfortable, stiff, swollen. I would suggest you consider >genuine Timoptic if there is the slightest question. You might also ask >yourself if you sleep on the right side of your face–this may be the source of >the feeling you describe, due to several hours pressure on the eye.
Which may not be related to any glaucoma. To have glaucoma, you have to have defective tissue in or supporting the eye-end of an optic nerve — way inside, at the back of your eye. While it may be theoretically possible, with an unusual anatomy, to cause a defect in tissue at said location by pressure from a sleeping position’s cutting off blood circulation to that location, or by another means, nobody has demonstrated this tie-in as far as I know — though there is an MD on this channel who has suggested it. Ray
Response:
On Mon, 02 Nov 1998 03:35:27 GMT, conniek…@my-dejanews.com wrote: ………… > I have open angle glaucoma.
Based on what signs and/or symptoms? Ray
Response:
> Anyway my questions are: > 1. I am 31 and I intend to live long – can I go for say next 40 yrs > without getting really big vision problems due to glaucoma? I know > knowbody can really predict – but I am interested if say my chances > are 10% or 50% or 80%? > 2. What are most important of the factors that I had measured (apart > from IOP)? Cup/disk ratio, Disk area, cup area? NFI, TSNIT????? hell I > don’t have idea what they mean – and I am type that really wants to > know what the hell is happening. > 3. How important is to keep same hour of Xalatan drops? I live active > life so sometimes I take it at 8pm, other day I take it at 11pm – does > it make a difference? > Dear Jarek,
Most of us concentrate on the C/D ratio, but really, it is the appearance of your nerve, especially the health of the rim that matters…that is not labeled numerically but rather descriptively by most docs. I can’t give you exact percentages of your risk of losing vision over a lifetime, but I can tell you that studies have shown that lowering IOP in low tension glaucoma does help to slow progressive visual field loss. The most important thing is to look for progressive changes on the HRT and GDX as well as on visual fields. Relax…it sounds like you are doing all of the right things. You may want to seek out an ophthalmologist who has more time to answer your questions. There are some of us out there. Don’t worry about the specific time you use your Xalatan. I tell patients to put it in right before going to bed, but if you’re off by an hour or two, don’t worry. At least you’re using it. Take care, Rick Cohn, MD Glaucoma Specialist Winter Park, FL
Response:
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