Up With The MTX
Question:
Thanks Maggie, that explains a lot. You folks are an awesome group David. <JD…@webtv.net> wrote in message
news:24080-403DBB98-45@storefull-3212.bay.webtv.net… – Hide quoted text — Show quoted text -> Got it! > http://www.orthop.washington.edu/arthritis/medications/corticosteroid… > There’s several pages, so just keep clicking on "next" to get to the > side effects. I think it was page 4 or 5 for side effects. Lots of > good info though. > Maggie
Response:
Hi Nina! I just don’t know what I’m dealing with. I can’t get a dx from a single doctor. They just say autoimmune everywhere I go. My eye(s) just gets really red & it hurts like a bugger & I can’t even look outside if it’s cloudy. Mine will inflame due to foreign matter getting in the eye or it will flare when coming off of the prednisone–no matter how slowly, it seems. From what I’ve read, I think it could be Uveitis because it can also affect the hearing. And that bites! : ) What are your exams for? And how’s the new MTX dose working for you? Hugs4u, Maggie
Response:
<JD…@webtv.net> skrev i meddelandet news:26723-403EE1E4-288@storefull-3215.bay.webtv.net… [...] The light sensitivity sounds like iritis/uveitis, but it could also be conjunctivitis. Iritis/uveitis can cause bad damage to the eye. If you get it again, please visit an ophthamologist right away, in order to get cortisone drops and other drops that will help dilate the pupil. If it’s really bad, you’ll get a cortisone injection into the eye (I almost passed out when I first heard this from a doctor). Here’s some info on uveitis and other autoimmune eye disease articles: http://www.uveitis.net/patient_information.htm http://www.uveitis.org/patient/articles/articles/default.html Pics of different eye diseases: http://www.eyeatlas.com/ > What are your exams for? And how’s the new MTX dose working for you?
They are prerequirements in order to get into the biomedicine program at medical school next semester. The new MTX dose (25 mg) has improved my mouth ulcers and the blood spots. Other than that, it hasn’t done a thing, not even stopped my sed rate and CRP from rising even higher. My RD has put me on a short Pred burst, so that I’ll get some energy and be able to do the exam. Having to sit 4 hours on a wooden chair is a very strange and unusual punishment for someone with back- and butt inflammation. Nina
Response:
Hi Maggie! I’m sorry you had to up your MTX. I sure hope it is worth it, and that you feel a lot better soon. Hugs, Wes – Hide quoted text — Show quoted text -JD…@webtv.net wrote in message <news:24084-403D5807-2@storefull-3212.bay.webtv.net>… > I’m going, going, went…back up to 20mg of MTX today. This is one time > my shot couldn’t possibly make me feel awful. : ) > Sure didn’t want to, but I knew if I didn’t, then I would likely be > forced to begin prednisone again. With that comes the eye inflammation > & I kinda need those. > So, I’m just hangin’ out, starting to wonder how everyone is? Nobody’s > posting & a few are seriously awol & I’m worried about a couple of them > in particular. > And you all know what that does to people; worry causes anxiety & that > causes stress & that causes flares, oh my! <g> > Maggie
Response:
Got it! http://www.orthop.washington.edu/arthritis/medications/corticosteroid… There’s several pages, so just keep clicking on "next" to get to the side effects. I think it was page 4 or 5 for side effects. Lots of good info though. Maggie
Response:
Hi Maggie, What’s the name of that eye inflammation you’ve had? I have eye inflammation too, episcleritis. Spondyloarthropathies are closely associated with iritis/uveitis but I hope that’s not what you have? Nina – who’s having two big exams within a week – aarrgh!!
Response:
Hugs Maggie Cindy
Response:
Hi David, Yep! That’s Methotrexate. I am doing shots at home–I do two shots each Wednesday,10mg each. I’m glad you have a doctor that’s so concerned about prednisone. It’s not a good drug to rely on, but I know deep down that I may very well have to rely on it many more times in this life. And so will others here. In my opinion, each person really has to determine whether the benefits outweigh *their* risks. Some take prednisone for awhile & never see the awful side effects, but it can take the next person by surprise & damage their kidneys or cause glaucoma. If you can keep your immune system controlled with MTX & Planquenil, then that’s always the way to go. However, if you ever flare in such a way that the meds aren’t working anymore & you are deteriorating quickly & can barely walk etc., then prednisone can miraculously bring you back around until you get a new drug in your system. In my case, I have autoimmune hearing loss & each time I use prednisone, or go off of it rather, my eye(s) become inflamed. So, that’s why I avoid it at all costs. But, if the MTX doesn’t kick back in & save me, I’d rather go ahead & take the prednisone because I know what happens if I don’t. Hope that helps. We had a discussion about prednisone not too long ago & there was a good link that Nina provided for side effects. I’ll see if I can find it before I try to go back to sleep. : ) Maggie
Response:
I’m going, going, went…back up to 20mg of MTX today. This is one time my shot couldn’t possibly make me feel awful. : ) Sure didn’t want to, but I knew if I didn’t, then I would likely be forced to begin prednisone again. With that comes the eye inflammation & I kinda need those. So, I’m just hangin’ out, starting to wonder how everyone is? Nobody’s posting & a few are seriously awol & I’m worried about a couple of them in particular. And you all know what that does to people; worry causes anxiety & that causes stress & that causes flares, oh my! <g> Maggie
Response:
Oh, Maggie I wonder out here for a few minutes and then get pulled away to do something. Besides I’ve got to get some sleep. So sorry to hear you are not doing well. So I’m sending you a big cyber hug. ((((((((((((((((((((HUG)))))))))))))))))))) Bev <JD…@webtv.net> wrote in message
news:24084-403D5807-2@storefull-3212.bay.webtv.net… – Hide quoted text — Show quoted text -> I’m going, going, went…back up to 20mg of MTX today. This is one time > my shot couldn’t possibly make me feel awful. : ) > Sure didn’t want to, but I knew if I didn’t, then I would likely be > forced to begin prednisone again. With that comes the eye inflammation > & I kinda need those. > So, I’m just hangin’ out, starting to wonder how everyone is? Nobody’s > posting & a few are seriously awol & I’m worried about a couple of them > in particular. > And you all know what that does to people; worry causes anxiety & that > causes stress & that causes flares, oh my! <g> > Maggie
Response:
Hi, Is MTX Methotrexate? I take 2.5mgX4 on Wednesday and on Thursday. I also take 200mg Plaquenil twice a day among other things. My rheumy advised me against prednisome. She said that the benefits do not justify side effects. Any thoughts on this? Thanks David <JD…@webtv.net> wrote in message
news:24084-403D5807-2@storefull-3212.bay.webtv.net… – Hide quoted text — Show quoted text -> I’m going, going, went…back up to 20mg of MTX today. This is one time > my shot couldn’t possibly make me feel awful. : ) > Sure didn’t want to, but I knew if I didn’t, then I would likely be > forced to begin prednisone again. With that comes the eye inflammation > & I kinda need those. > So, I’m just hangin’ out, starting to wonder how everyone is? Nobody’s > posting & a few are seriously awol & I’m worried about a couple of them > in particular. > And you all know what that does to people; worry causes anxiety & that > causes stress & that causes flares, oh my! <g> > Maggie
Response:
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