Nodules

Question:

<snip>"Andy"  wrote in message

 > Our group had a talk from an eye doctor recently, and he said that > glaucoma can nearly always be successfully treated once it is diagnosed > </snip>

Yes, I  was told the same; as I said it is ’suspiciously’ presenting as glaucoma and being monitored closely so I am not worried; my vision is not changed ‘to my perception’; time will tell and with luck it will be good news! ……… Shelagh

Response:

Shelagh; The increased pressure was found during a routine eye exam; the Optho guy said my optic nerve and blood supply were ‘wonderful’ and so healthy and then he tells me of the increase in pressure.  He said he is 99% sure I do not have glaucoma and I am to come back in 6 months to go through the whole thing.  Carol "Shelagh" <n…@myob.bc.ca> wrote in message

news:j8Mpd.357053$%k.154729@pd7tw2no… – Hide quoted text — Show quoted text -> <snip>"saskie"  wrote in message > > Also on my last exam the pressure in > > one eye is up to 200; a sudden increase. > > Carol in Sask Canada > </snip> > I too was told I am ‘under suspicion’ for glaucoma right now due to a sudden > increase in pressure in my right eye along with a minimal loss of peripheral > vision…. > I was told as well that it may be due to the angle of my lens because I am > so short sighted; > I do have field vision studies done every 6 months as well as my eye > pressure is measured and my optic nerve viewed each time as well… > this news just came up last visit and the opthm. said not to worry and he > also did say that people with a high degree of short sight (which is me in > my right eye only) are more prone to chronic glaucoma (not acute);  he also > mentioned that diabetes is believed to increase the risk of developing this > condition….. I don’t have diabetes, just lupus and I am being watched > carefully; > I would suggest that you too should have the 3 tests done regularly ‘in > case’. > FWIW, > from Shelagh

Response:

Bev, the pain you describe is similar to what I have, my eyes hurt when I move them, usually by night but sometimes as soon as I wake up.  I have pain in my right temple that no one wants to address it seems.  It is also on the same side as the TMJ.  I never thought of your theory. Carol "Beverley" <beverly.brow…@verizon.net> wrote in message

news:S20qd.1387$lv6.701@trnddc03… – Hide quoted text — Show quoted text -> That might have been me you were thinking about. Years ago I was tested for > some kind of arteritis at John Hopkins. The pain was terrible and by eye > sight was being affected. When I told the doctor he sent me to a > ophthalmologist who discovered the eye pressure thing. Well, they never > found what they were looking for – thank goodness as it was considered > deadly (Takayasu’s arteritis. But so was lupus back in those > days………….. Shame they didn’t pick up on the lupus but I don’t think > they were looking for it. When I was dx’ed with lupus they used my medical > history and that episode was one of the places the doctor referred to as a > major lupus flare and questioned why John Hopkins never even tested or > considered lupus. > The problem started with pain in my neck. I think I have a lymph node under > the artery that swells and puts pressure on the artery. It feels like a > killer earache but it’s the artery because you can follow it with your > finger. The pain is really bad and although I can move my neck/head when it > occurs I don’t want to move it. John Hopkins tried to say it was an inflamed > strap muscle because they could find nothing conclusive after about 6 days > of trying. But it has hit several times since then and I find it does go > away especially if I have been given a round of antibiotics. I still say it > is from the lymph node and it’s my body!!!! But it does screw up the > pressure in my eye. (And in those days testing the pressure in my eyes was > terrible. At John Hopkins they inserted little disks onto my eyeballs which > were connected to tubes to a machine. The ophthalmologist wasn’t quite as > bad he used a tube that looked like a thermometer, cocked it and fired a > thing into my eye that bounced back up the tube. Damn, it hurt!! Now they do > it with a little puff of air. Isn’t it wonderful when they actually improve > something!) > But the kicker to all of this is I now have trigeminal neuralgia. It is on > the same side as the "other" problem. I often wonder if somehow it is > connected. > Bev > "J" <sc…@example.org> wrote in message > news:41A66CAD.596403EB@execulink.com… > > saskie wrote: > > > Strangely I do not have them in the elbow area but last night I was so > itchy > > > and found a big one on my arm near my wrist and on my buttocks, just > itchy > > > not sore. > > > The bump on my eyebrow comes and goes, it is there when I have bad > neuralgia > > > ; a Neuro I saw years ago said it is involvement with the 7th??  I think > > > cranial nerve.  So far feet and ear are alright so no neuroma; sorry for > the > > > misuse of the term. > > > Another thing I wonder about is the ptosis of the eyelid, I have a hard > time > > > opening my eyes really wide and have the hooded look , the eye fellow > said > > > it is simple surgery but I will pass.  Also on my last exam the pressure > in > > > one eye is up to 200; a sudden increase. > > Hi Carol, I’d like to withdraw the EMG idea on that bump on your eyebrow. > I’d > > forgotten about the neuralgia. > > Might make things worse. > > I don’t know if it’s the 7th of II/III rd cranial nerve > > Have a look here. Maybe you can figure it out. > > They also mention a large muscle that makes the eyelid open. > > http://brighamrad.harvard.edu/Cases/bwh/hcache/357/full.html > > I don’t like the sounds of the eye pressure going up. > > I think someone else had that here. Numerous have had tests for eye > pressure but > > I forgot who and what was found. > > maybe BJ remembers. > > Hugs > > J

Response:

That might have been me you were thinking about. Years ago I was tested for some kind of arteritis at John Hopkins. The pain was terrible and by eye sight was being affected. When I told the doctor he sent me to a ophthalmologist who discovered the eye pressure thing. Well, they never found what they were looking for – thank goodness as it was considered deadly (Takayasu’s arteritis. But so was lupus back in those days………….. Shame they didn’t pick up on the lupus but I don’t think they were looking for it. When I was dx’ed with lupus they used my medical history and that episode was one of the places the doctor referred to as a major lupus flare and questioned why John Hopkins never even tested or considered lupus. The problem started with pain in my neck. I think I have a lymph node under the artery that swells and puts pressure on the artery. It feels like a killer earache but it’s the artery because you can follow it with your finger. The pain is really bad and although I can move my neck/head when it occurs I don’t want to move it. John Hopkins tried to say it was an inflamed strap muscle because they could find nothing conclusive after about 6 days of trying. But it has hit several times since then and I find it does go away especially if I have been given a round of antibiotics. I still say it is from the lymph node and it’s my body!!!! But it does screw up the pressure in my eye. (And in those days testing the pressure in my eyes was terrible. At John Hopkins they inserted little disks onto my eyeballs which were connected to tubes to a machine. The ophthalmologist wasn’t quite as bad he used a tube that looked like a thermometer, cocked it and fired a thing into my eye that bounced back up the tube. Damn, it hurt!! Now they do it with a little puff of air. Isn’t it wonderful when they actually improve something!) But the kicker to all of this is I now have trigeminal neuralgia. It is on the same side as the "other" problem. I often wonder if somehow it is connected. Bev "J" <sc…@example.org> wrote in message

news:41A66CAD.596403EB@execulink.com… – Hide quoted text — Show quoted text -> saskie wrote: > > Strangely I do not have them in the elbow area but last night I was so itchy > > and found a big one on my arm near my wrist and on my buttocks, just itchy > > not sore. > > The bump on my eyebrow comes and goes, it is there when I have bad neuralgia > > ; a Neuro I saw years ago said it is involvement with the 7th??  I think > > cranial nerve.  So far feet and ear are alright so no neuroma; sorry for the > > misuse of the term. > > Another thing I wonder about is the ptosis of the eyelid, I have a hard time > > opening my eyes really wide and have the hooded look , the eye fellow said > > it is simple surgery but I will pass.  Also on my last exam the pressure in > > one eye is up to 200; a sudden increase. > Hi Carol, I’d like to withdraw the EMG idea on that bump on your eyebrow. I’d > forgotten about the neuralgia. > Might make things worse. > I don’t know if it’s the 7th of II/III rd cranial nerve > Have a look here. Maybe you can figure it out. > They also mention a large muscle that makes the eyelid open. > http://brighamrad.harvard.edu/Cases/bwh/hcache/357/full.html > I don’t like the sounds of the eye pressure going up. > I think someone else had that here. Numerous have had tests for eye pressure but > I forgot who and what was found. > maybe BJ remembers. > Hugs > J

Response:

It is important to catch glaucoma early enough to avoid damage to the eye. The damage cannot be undone. (I have a niece with glaucoma and she’s had it since she was a very small child – maybe 4-5 years old when diagnosed.) Bev "Andy" <a…@kitzbuhel.demon.co.uk> wrote in message

news:jLwC1dXKx5pBFwDL@kitzbuhel.demon.co.uk… – Hide quoted text — Show quoted text -> In article <j8Mpd.357053$%k.154729@pd7tw2no>, Shelagh <n…@myob.bc.ca> > wrote > [ > >I too was told I am 'under suspicion' for glaucoma right now due to a sudden > >increase in pressure in my right eye along with a minimal loss of peripheral > >vision.... > Our group had a talk from an eye doctor recently, and he said that > glaucoma can nearly always be successfully treated once it is diagnosed. > -- > Andy Taylor [Chair, N E Lupus Group] > See http://www.northeastlupus.org.uk for more!

Response:

<snip>"saskie"  wrote in message > Also on my last exam the pressure in > one eye is up to 200; a sudden increase. > Carol in Sask Canada

</snip> I too was told I am ‘under suspicion’ for glaucoma right now due to a sudden increase in pressure in my right eye along with a minimal loss of peripheral vision…. I was told as well that it may be due to the angle of my lens because I am so short sighted; I do have field vision studies done every 6 months as well as my eye pressure is measured and my optic nerve viewed each time as well… this news just came up last visit and the opthm. said not to worry and he also did say that people with a high degree of short sight (which is me in my right eye only) are more prone to chronic glaucoma (not acute);  he also mentioned that diabetes is believed to increase the risk of developing this condition….. I don’t have diabetes, just lupus and I am being watched carefully; I would suggest that you too should have the 3 tests done regularly ‘in case’. FWIW, from Shelagh

Response:

In article <j8Mpd.357053$%k.154729@pd7tw2no>, Shelagh <n…@myob.bc.ca> wrote [ >I too was told I am 'under suspicion' for glaucoma right now due to a sudden >increase in pressure in my right eye along with a minimal loss of peripheral >vision....

Our group had a talk from an eye doctor recently, and he said that glaucoma can nearly always be successfully treated once it is diagnosed. -- Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!

Response:

- Hide quoted text — Show quoted text -saskie wrote: > I was not sure what to call these but if I had given it a thought I would > have said nodules as my husband has Non Hodgkins Lymphoma and I am forever > palpating his lymph nodes.  Not really, he won’t let me but I want too. > Thank you for your replies; BJ you are the first real person I have met who > has had these; I have them down the length of radius in both arms but they > are not painful.  I will get myself off to my Dr. here in town, he is very > well versed in autoimmune disorders. > Thank you J for the website; I will post the Dr. Wallace blurb later.  I > think you are right about the muscle perhaps being the problem with the > pain.  I am sorry you had such an experience with the removal; that is what > concerns me as I have a small node on my eyebrow [neuroma] I am not sure but > I will let no one touch it. > Saskie; very cold and dark here

Hi I think BJ said something about the muscle. It’s hard to know what’s on your eyebrow. When I looked up neuroma, I seem to get either Morton’s (foot) or acoustic neuroma (ear?/brain?). Your experience could be different from mine, (we’re all different).  3 (doctors) took guesses at what the lump was and all were wrong (until after excision). One thought it was bone or osteoarthritis, one thought it was attached to the bone, one thought it was a rheumatoid nodule, another blew me off with a sebacious cyst idea and gave me cream that seemed to make it worse..I think that was a harbinger of things to come, in retrospect, becauwe I put a bandange over the cream and woke up in the middle of night in severe pain, so the bandage must have been pressing on nerves?).  I don’t know what nerve pathways are in the eyebrow, but if we pluck a hair there, we can sure feel it, eh? So there’s got to be nerve pathways there. Earlier you were asking about lupus profundus. The only reason I wanted it gone was because of pain, so if you arm nodules aren’t hurting probably best to leave them alone? If the eyebrow is unsightly and/or painful, maybe your GP can order up an EMG to see if they can figure out nerve pathways, before surgery?  Just a thought. J

Response:

saskie wrote: > Strangely I do not have them in the elbow area but last night I was so itchy > and found a big one on my arm near my wrist and on my buttocks, just itchy > not sore. > The bump on my eyebrow comes and goes, it is there when I have bad neuralgia > ; a Neuro I saw years ago said it is involvement with the 7th??  I think > cranial nerve.  So far feet and ear are alright so no neuroma; sorry for the > misuse of the term. > Another thing I wonder about is the ptosis of the eyelid, I have a hard time > opening my eyes really wide and have the hooded look , the eye fellow said > it is simple surgery but I will pass.  Also on my last exam the pressure in > one eye is up to 200; a sudden increase.

Hi Carol, I’d like to withdraw the EMG idea on that bump on your eyebrow. I’d forgotten about the neuralgia. Might make things worse. I don’t know if it’s the 7th of II/III rd cranial nerve Have a look here. Maybe you can figure it out. They also mention a large muscle that makes the eyelid open. http://brighamrad.harvard.edu/Cases/bwh/hcache/357/full.html I don’t like the sounds of the eye pressure going up. I think someone else had that here. Numerous have had tests for eye pressure but I forgot who and what was found. maybe BJ remembers. Hugs J

Response:

I don’t have them in the elbow area either, Carol. We must be misfits. BJ-Sk. Canada "saskie" <saskiehometow…@hotmail.com> wrote in message

news:10qcktjslf229f8@corp.supernews.com… – Hide quoted text — Show quoted text -> The little blurb in Dr. Wallaces book is under Joints and Soft Tissues and > speaks of rheumatoid-like nodules in the  elbow " may have rheumatoid-like > nodules in the elbow area, which feel like little peas.  These nodules are > much smaller than those seen in RA and are of little clinical importance > except that they may cause the area below the elbow to fill up with fluid > when they break down"  The Lupus Book , Daniel Wallace, M.D.  Page 77 > Strangely I do not have them in the elbow area but last night I was so itchy > and found a big one on my arm near my wrist and on my buttocks, just itchy > not sore. > The bump on my eyebrow comes and goes, it is there when I have bad neuralgia > ; a Neuro I saw years ago said it is involvement with the 7th??  I think > cranial nerve.  So far feet and ear are alright so no neuroma; sorry for the > misuse of the term. > Another thing I wonder about is the ptosis of the eyelid, I have a hard time > opening my eyes really wide and have the hooded look , the eye fellow said > it is simple surgery but I will pass.  Also on my last exam the pressure in > one eye is up to 200; a sudden increase. > Carol in Sask Canada > "J" <sc…@example.org> wrote in message > news:41A6305F.82155B55@execulink.com… > > saskie wrote: > > > I was not sure what to call these but if I had given it a thought I > would > > > have said nodules as my husband has Non Hodgkins Lymphoma and I am > forever > > > palpating his lymph nodes.  Not really, he won’t let me but I want too. > > > Thank you for your replies; BJ you are the first real person I have met > who > > > has had these; I have them down the length of radius in both arms but > they > > > are not painful.  I will get myself off to my Dr. here in town, he is > very > > > well versed in autoimmune disorders. > > > Thank you J for the website; I will post the Dr. Wallace blurb later. I > > > think you are right about the muscle perhaps being the problem with the > > > pain.  I am sorry you had such an experience with the removal; that is > what > > > concerns me as I have a small node on my eyebrow [neuroma] I am not sure > but > > > I will let no one touch it. > > > Saskie; very cold and dark here > > Hi I think BJ said something about the muscle. > > It’s hard to know what’s on your eyebrow. When I looked up neuroma, I seem > to > > get either Morton’s (foot) or acoustic neuroma (ear?/brain?). Your > experience > > could be different from mine, (we’re all different).  3 (doctors) took > guesses > > at what the lump was and all were wrong (until after excision). One > thought it > > was bone or osteoarthritis, one thought it was attached to the bone, one > thought > > it was a rheumatoid nodule, another blew me off with a sebacious cyst idea > and > > gave me cream that seemed to make it worse..I think that was a harbinger > of > > things to come, in retrospect, becauwe I put a bandange over the cream and > woke > > up in the middle of night in severe pain, so the bandage must have been > pressing > > on nerves?). > >  I don’t know what nerve pathways are in the eyebrow, but if we pluck a > hair > > there, we can sure feel it, eh? So there’s got to be nerve pathways there. > > Earlier you were asking about lupus profundus. > > The only reason I wanted it gone was because of pain, so if you arm > nodules > > aren’t hurting probably best to leave them alone? > > If the eyebrow is unsightly and/or painful, maybe your GP can order up an > EMG to > > see if they can figure out nerve pathways, before surgery?  Just a > thought. > > J

Response:

saskie wrote: > The little blurb in Dr. Wallaces book is under Joints and Soft Tissues and > speaks of rheumatoid-like nodules in the  elbow " may have rheumatoid-like > nodules in the elbow area, which feel like little peas.  These nodules are > much smaller than those seen in RA and are of little clinical importance > except that they may cause the area below the elbow to fill up with fluid > when they break down"  The Lupus Book , Daniel Wallace, M.D.  Page 77

Thank you Carol for looking that up and typing it for us. Hugs J

Response:

The little blurb in Dr. Wallaces book is under Joints and Soft Tissues and speaks of rheumatoid-like nodules in the  elbow " may have rheumatoid-like nodules in the elbow area, which feel like little peas.  These nodules are much smaller than those seen in RA and are of little clinical importance except that they may cause the area below the elbow to fill up with fluid when they break down"  The Lupus Book , Daniel Wallace, M.D.  Page 77 Strangely I do not have them in the elbow area but last night I was so itchy and found a big one on my arm near my wrist and on my buttocks, just itchy not sore. The bump on my eyebrow comes and goes, it is there when I have bad neuralgia ; a Neuro I saw years ago said it is involvement with the 7th??  I think cranial nerve.  So far feet and ear are alright so no neuroma; sorry for the misuse of the term. Another thing I wonder about is the ptosis of the eyelid, I have a hard time opening my eyes really wide and have the hooded look , the eye fellow said it is simple surgery but I will pass.  Also on my last exam the pressure in one eye is up to 200; a sudden increase. Carol in Sask Canada "J" <sc…@example.org> wrote in message

news:41A6305F.82155B55@execulink.com… – Hide quoted text — Show quoted text -> saskie wrote: > > I was not sure what to call these but if I had given it a thought I would > > have said nodules as my husband has Non Hodgkins Lymphoma and I am forever > > palpating his lymph nodes.  Not really, he won’t let me but I want too. > > Thank you for your replies; BJ you are the first real person I have met who > > has had these; I have them down the length of radius in both arms but they > > are not painful.  I will get myself off to my Dr. here in town, he is very > > well versed in autoimmune disorders. > > Thank you J for the website; I will post the Dr. Wallace blurb later.  I > > think you are right about the muscle perhaps being the problem with the > > pain.  I am sorry you had such an experience with the removal; that is what > > concerns me as I have a small node on my eyebrow [neuroma] I am not sure but > > I will let no one touch it. > > Saskie; very cold and dark here > Hi I think BJ said something about the muscle. > It’s hard to know what’s on your eyebrow. When I looked up neuroma, I seem to > get either Morton’s (foot) or acoustic neuroma (ear?/brain?). Your experience > could be different from mine, (we’re all different).  3 (doctors) took guesses > at what the lump was and all were wrong (until after excision). One thought it > was bone or osteoarthritis, one thought it was attached to the bone, one thought > it was a rheumatoid nodule, another blew me off with a sebacious cyst idea and > gave me cream that seemed to make it worse..I think that was a harbinger of > things to come, in retrospect, becauwe I put a bandange over the cream and woke > up in the middle of night in severe pain, so the bandage must have been pressing > on nerves?). >  I don’t know what nerve pathways are in the eyebrow, but if we pluck a hair > there, we can sure feel it, eh? So there’s got to be nerve pathways there. > Earlier you were asking about lupus profundus. > The only reason I wanted it gone was because of pain, so if you arm nodules > aren’t hurting probably best to leave them alone? > If the eyebrow is unsightly and/or painful, maybe your GP can order up an EMG to > see if they can figure out nerve pathways, before surgery?  Just a thought. > J

Response:

I would be interested in what your doctor has to say about the nodules. Particularly since I have them strung like beads along the sides of my bones. I have never asked anybody about those. Only the ones on my spine were talked about and treated. The others never hurt, so I let that one go. Maybe it is a Sk, climate thing. <g> Seems we are the only ones that have these little goodies. Good luck. BJ-Sk. Canada "saskie" <saskiehometow…@hotmail.com> wrote in message

news:10qa3l1ihg6opec@corp.supernews.com… – Hide quoted text — Show quoted text -> I was not sure what to call these but if I had given it a thought I would > have said nodules as my husband has Non Hodgkins Lymphoma and I am forever > palpating his lymph nodes.  Not really, he won’t let me but I want too. > Thank you for your replies; BJ you are the first real person I have met who > has had these; I have them down the length of radius in both arms but they > are not painful.  I will get myself off to my Dr. here in town, he is very > well versed in autoimmune disorders. > Thank you J for the website; I will post the Dr. Wallace blurb later.  I > think you are right about the muscle perhaps being the problem with the > pain.  I am sorry you had such an experience with the removal; that is what > concerns me as I have a small node on my eyebrow [neuroma] I am not sure but > I will let no one touch it. > Saskie; very cold and dark here

Response:

I was not sure what to call these but if I had given it a thought I would have said nodules as my husband has Non Hodgkins Lymphoma and I am forever palpating his lymph nodes.  Not really, he won’t let me but I want too. Thank you for your replies; BJ you are the first real person I have met who has had these; I have them down the length of radius in both arms but they are not painful.  I will get myself off to my Dr. here in town, he is very well versed in autoimmune disorders. Thank you J for the website; I will post the Dr. Wallace blurb later.  I think you are right about the muscle perhaps being the problem with the pain.  I am sorry you had such an experience with the removal; that is what concerns me as I have a small node on my eyebrow [neuroma] I am not sure but I will let no one touch it. Saskie; very cold and dark here

Response:

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